Hi Mental Health for US
Just discovered you and your platform asking 2020 political candidates to talk about mental health in their campaigns. I see no specific mention of serious mental illnesses (SMI) such as schizophrenia, schizo-affective disorder, bipolar disorder, etc. Some people are not able to recover from SMI and languish in prison, in solitary, in not-so-good care homes or in their parents’ back bedroom for years and years.
I belong to a dozen Facebook groups of families of the SMI. Their stories are horrific and from across the nation. They’re not able to find help anywhere.
I want to support your efforts. I’ve been sending letters to candidates and calling on Facebook and on my blog for 2020 candidates to step up, speak about, and put forth national plans for SMI that do the following: Reform HIPAA, repeal the IMD exclusion, do brain research into these insidious brain diseases, provide for long-term care and short-term outpatient services, improve access, provide housing, supported education, and family supports. Not simply mental health. Not simply drug and alcohol addiction. Serious mental illness.
Would Mental Health for US be willing to expand its platform to include SMI - specifically spelling it out, not simply lumping it into mental health?
I hope your answer is yes.
You can read stories about SMI individuals and families — across the US - that I’ve been posting for 31/2 years on my website and blog. You can also read my own story in my book about my and my son’s struggles for over 25 years to get help for his SMI. He died in 2014 on a hospital psych ward. He was transferred, without my knowledge, out of county (lack of beds), his records weren’t forwarded with him, and I couldn’t get doctors to talk to me (HIPAA) even though I was on my son’s Advance Care Directive.
I unwittingly captured the last year of Pat's life in my book which, among other things, includes his story and many stories of individuals and families being failed by the system.
I will sign on and volunteer to help you once I’m satisfied that this undertaking includes SMI and specifically mentions it in your platform.
Thank you. I look forward to hearing from you.
A Safe Place to Talk About Mental Illness in Our Families
Sooner Than Tomorrow — A Mother’s Diary About Mental Illness, Family, and Everyday Life
By Dede Ranahan with Patrick Ranahan
https://www.mentalhealthforus.net Please read this platform and send a message asking that it include SMI specifically.