The new year lies before me
like a spotless track of snow.
I must be careful how I tread on it,
for every mark will show.
(I altered a little. Original author unknown.)
Your Custom Text Here
(I altered a little. Original author unknown.)
A coalition of advocates for people living with serious mental illnesses have penned an open letter to California Attorney General, Xavier Becerra, President Joe Biden's pick for HHS Secretary. They urge him to appointment an Assistant Secretary for Mental Health and Substance Use who will continue to adjust past inequities, and move forward with 21st Century science that embraces evidence-based practices for lifesaving care. I co-signed the document wth 11 others. Here is the link for the letter: Also reproduced below.
February 8, 2021
The Honorable Xavier Becerra
Attorney General
State of California
Department of Justice
1300 I Street Sacramento, CA 95814
RE: Appointment of HHS Assistant Secretary for Mental Health and Substance Use
Dear Secretary Becerra,
Congratulations on being selected Secretary of Health and Human Services. We are excited about the future of healthcare in America under your leadership. The national dialogue on mental illness is of critical importance and has been largely stagnant since the Kennedy Administration. We are advocates for people living with the symptoms of severe and disabling brain diseases, such as schizophrenia and bipolar disorder, and we are writing to you about the appointment of the Assistant Secretary for Mental Health and Substance Use.
Please support recommendations by the Treatment Advocacy Center to appoint an Assistant Secretary who will ensure that the Substance Abuse and Mental Health Services Administration (SAMHSA) prioritizes the needs of people with severe mental illness consistent with Congress’ intent in creating the position as part of the 21st Century Cures Act. That legislation passed with wide bipartisan support, was signed into law by President Obama in December of 2016, and has multiple sections that recognize the importance of prioritizing treatment of severe mental illness (SMI), not the least of which was the creation of the Assistant Secretary position.
Thank you for your vote for this piece of landmark legislation as a member of the House of Representatives. We appreciate that you understand the importance of prioritizing serious mental illness within the Department of Health and Human Services. We ask you to further prioritize this urgent and underserved need as Secretary.
Critical to the survival and well-being of people who suffer from SMI is removing policy barriers to psychiatric treatment and care. Like diseases that cause dementia in elderly people, schizophrenia and other serious psychiatric disorders often impair the ability for a person to self-manage. About half of the time, the most serious mental illness conditions include a symptom that disables a person’s ability to “see” the illness itself (anosognosia), rendering them unable to initiate their own care.
Members of our grassroots organizations and coalitions have close relatives with SMI and know first-hand what happens when a person cannot understand their illness or know how to care for it within a system that has wrongly prioritized choice and self-determination for individuals who lack the ability to make rational decisions. Our loved ones have been incarcerated and discarded into homelessness. Many have died from suicide or medical complications caused by poor care.
If we are to build a mental health system that encompasses an appropriate inclusionary continuum of coordinated psychiatric treatment and care, we must commit appropriate attention and resources to patients who are the most severely impacted. In the past, an errant popular belief that “everyone can recover” from SMI has directed scarce resources away from this critically ill population and focused almost entirely on individuals with the capacity to self-manage. The result includes the alarming reality that 1 of 10 individuals in a mental illness crisis goes to jail instead of a hospital.
Our families are counting on the Biden Administration to adjust past inequities and move forward with unity around 21st Century science that embraces evidence-based practices for lifesaving care. We recognize and support the many organizations working to build a functional system of treatment and care for people living with severe mental illnesses. Nevertheless, there is much more that needs to be done. Severe mental illness is the humanitarian crisis of our times.
Historically, the tragic stories of families like ours have been excluded from policy decisions. We are united firmly that this cannot continue. The horrific circumstances of people who suffer immeasurable harm because of a system of “care” that punishes and neglects them instead of providing access to evidence-based treatment is unconscionable. We can do so much better as a civilized society. You have power to begin correcting these errors by appointing an Assistant Secretary for Mental Health and Substance Use who understands the history and current problems with SMI treatment in America and will listen to people with real life experiences.
With respect and hope for collaboration.
Janet Hays
Healing Minds NOLA
Co-signed:
Leslie Carpenter
Serious Brain Disorders Advocate
lcarpenter@iamentalhealth.com
https://iamentalhealth.com/
Jerri Clark
MOMI - Mothers of the Mentally Ill
jerri.clark@momi-wa.org
Jeanne A. Gore
Coordinator & Co-Chair, Steering Committee - NSSC
coordinator@nationalshatteringsilencecoalition.org
http://www.nationalshatteringsilencecoalition.org
The National Shattering Silence Coalition speaks out about federal, state, and local policies that impact adults and children living with serious brain disorders (SBD), commonly referred to as “serious mental illness”, and advocates for change
Robert S. Laitman, MD,
Board of Directors: Schizophrenia and Related Disorders Alliance of America (SARDAA)
Board member: National Alliance on Mental Illness (NAMI - New York).
Author: “MEANINGFUL RECOVERY from Schizophrenia and Serious Mental Illness with Clozapine: Hope & Help”
Teresa Pasquini
SMI Advocate for Housing That Heals
https://hth.ttinet.com/Housing_That_Heals_2020.pdf
tcpasquini@gmail.com
Laura Pogliano
Schizophrenia and Related Disorders Alliance of America (SARDAA)
State Chapter Lead (MD)
Laura.pogliano@sardaa.org
Joshua N. Mozell
President, Association for the Chronically Mentally Ill (ACMI), AZ
jmozell@frglaw.com
Kathy Day
President, Pro Caregiver Consultants
Kathy@procaregiverconsultants.org
Dede Ranahan
Author, Tomorrow Was Yesterday - Explosive First-Person Indictments of the US Mental Health System — Mothers Across the Nation Tell It Like It is | with 64 Co-Co-Authors (Amazon 2020)
www.soonerthantomorrow.com A Safe Place to Talk About Mental Illness In Our Families
dederanahan@gmail.com
Lauren Rettagliata
Housing That Heals
https://hth.ttinet.com/Housing_That_Heals_2020.pdf
rettagliata@gmail.com
Eric Smith
Consultant and Mental Health Advocate
PARTICIPANTS FROM 50 STATES:
ALABAMA
Ruth Griffin
ALASKA
Robin Duffey: President Biden, Ashley Biden
ARIZONA
Cheri VanSant: Dr. Jill Biden
ARKANSAS
Nancy Young
CALIFORNIA
Ingrid Dempsey: Dr. Jill Biden
Jennifer Diane: President Biden, Dr. Jill Biden, Vice-President Harris
CJ Hanson: Vice-President Harris
Darlene Merz
Linda Rippee Privatte: Xavier Becerra, Secretary of Health & Human Services Nominee, 2nd Gentleman, Doug Emhoff, Vice-President Harris
Dede Ranahan: President Biden, Vice-President Harris, Dr.Jill Biden, Ashley Biden, Xavier Becerra, Secretary of Health and Human Services Nominee
Kat Shultz
Catherine Woodward: Xavier Becerra, HHS Secretary Nominee
COLORADO
Alison Canjar: President Biden
Catherine Lambert: Vice-President Harris
CONNECTICUT
Colleen Lord
DELAWARE
Cheryle Vitelli
FLORIDA
Deborah Knighton: Vice-President Harris
Deborah Krug: President Biden, Vice-President Harris, HHS Nominee Xavier Becerra
Gemma Pena: Ashley Biden
Lori Reho
Sandy Turner: President Biden, Vice-President Harris
Chris Upchurch: President Biden
GEORGIA
Mori Swafford
HAWAII
Wendy Lagareta
IDAHO
Angela McCandless
Karena Yachts: Vice-President Harris
ILLINOIS
Jane Wahl Anderson: Vice-President Harris
Tonya Brown
Penney Jo Dickey: Vice-President Harris
INDIANA
Diann Benefiel: Dr. Jill Biden
IOWA
Leslie Carpenter: President Biden
KANSAS
Cindy Glaeser: Vice-President Harris, Rep Sharice Davids
Judy Niebaum: Dr. Jill Biden
KENTUCKY
Janice Morgan: Vice-President Harris
Joann Strunk: Dr. Jill Biden
LOUISIANA
Tiffany Treadway Morton: President Biden
MAINE
Jeanne Gore: Maine Governor Janet Mills, Jessica Pollard, Maine Director of Substance Abuse and Mental Health Services
Jennifer Johnson: Ashley Biden
Laurie Turley: President Biden; Vice-President Harris
MARYLAND
Amy Swartz Kerr: Dr. Jill Biden
Marilyn Marten: President Biden
Laura Pogliano: Dr. Jill Biden
MASSACHUSETTS
Robin Carmona Evensen: Dr. Jill Biden
Deb Harper: President Biden
Beth Tuleja: President Biden, Vice-President Harris, Secretary HHS Xavier Becerra Nominee
MICHIGAN
Kimberley Blaker: President Biden, Vice-President Harris
Therese Paivarinta:
MINNESOTA
Emily Iverson Story: Dr.Jill Biden
Jeff Story: Vice-President Harris
MISSISSIPPI
Kathy Hilton: Xavier Becerra, Nominee for HHS Secretary
MISSOURI
Kerry Madison
MONTANA
Montana Witsend: Xavier Becerra, HHS Secretary Nominee
NEBRASKA
Michelle Chapment: President Biden
NEVADA
Tammera Glover
Kristin Hasting
NEW HAMPSHIRE
Nancy LaBranch: President Biden
NEW JERSEY
Mary Moran
Clara Thomas
NEW MEXICO
Pamela Field: Vice-President Harris
NEW YORK
Deborah Bonneau
Clarissa Cece Crader
Pamela Field: Vice-President Harris
Gail Freedman
MoJo MiMi: Dr. Jill Biden
Shreya MN: Vice-President Harris
NORTH CAROLINA
Sherri McGimsey
Leah Moran
NORTH DAKOTA
Phillip Henley
OHIO
Kelly Montgomery: Dr. Jill Biden
Ingrid Silvian
OKLAHOMA
Audrey Adams Auernheimer
Melissa McLemore: Ashley Biden
OREGON
Julie Brown: Vice-President Harris
Mary Murphy: Ashley Biden
Sharon Underwood: Amy Klobuchar, Surgeon General Nominee Dr. Vivek Murthy, Congressman Peter Defazio
PENNSYLVANIA
Martha Stringer
RHODE ISLAND
Susannah Currie: Dr. Jill Biden
SOUTH CAROLINA
Elaine De Lancey Gilliam
SOUTH DAKOTA
Bettie Prince
TENNESSEE
Pat Morgan: Dr Jill Biden
TEXAS
Joyce Berryman: Ashley Biden
Marti Cockrell: President Biden
Sarah Leigland
Frances Musgrove
Prissy Snelling: Vice-President Harris
Chris Tina
UTAH
Heidi Franke: Dr. Jill Biden
VERMONT
Ron Powers: Xavier Becerra, HSS Secretary Nominee
VIRGINIA
Patricia Wood: Xavier Becerra, Secretary HHS Nominee
WASHINGTON
Jerri Clark: Dr. Jill Biden
Lynda Learned Hawkins
WEST VIRGINIA
Jean Hill Daquila
WISCONSIN: Mary Anderson Frey: President Biden
WYOMING
Kim Merrill
Since my last post on January 22, 2021, a new grassroots undertaking has grown exponentially. I’m calling it our TOMORROW WAS YESTERDAY WHITE HOUSE BOOK PROJECT.
LET'S DO SOMETHING REALLY BIG!
WE ALREADY HAVE REPRESENTATION FROM 39 STATES! We hope to have one book sent to the White House from each of our 50 states.
1) ORDER YOUR BOOK COPY OF TOMORROW WAS YESTERDAY FROM AMAZON.
https://www.amazon.com/Tomorr.../dp/1732974527/ref=sr_1_1...
2) MAIL THE BOOK TO THE WHITE HOUSE AND YOUR CHOSEN RECIPIENT (SEE SAMPLE COVER LETTER BELOW) FROM YOUR HOME ADDRESS.
3) INCLUDE A PHOTO OF YOUR LOVED ONE IF YOU WISH AND INSERT IT IN THE BOOK WITH THE COVER LETTER. (photo will not be returned)
4) EMAIL THE WHITE HOUSE TO GIVE THEM A HEADS-UP THAT YOU’RE MAILING A BOOK.
Link to White House email:
Can you imagine if the White House were to receive a copy of Tomorrow Was Yesterday from each state in the nation? With a request to develop a National Plan to Address Serious Mental Illness? Send me an email if you choose to participate and which state you represent and who you are sending a book copy to. I'll add your name to a spreadsheet to see if we can cover all 50 states. Multiple copies from the same state will send an even stronger message so don't worry about duplications.
dede@soonerthantomorrow.com
If you live in one of the 11 remaining states without representation yet, please consider joining us. Thanks so much. Or if you know someone who lives in one of these states, ask them if they'd like to help.
We have a book sponsor who is willing to order a few books on Amazon, send you a copy, and help you represent your state. Email me if you want to receive a copy from her.
STATES NEEDING A REPRESENTATIVE
GEORGIA
HAWAII
KANSAS
MISSOURI
NEBRASKA
NEVADA
NORTH DAKOTA
RHODE ISLAND
SOUTH DAKOTA
WEST VIRGINIA
WYOMING
SAMPLE COVER LETTER TO BE INSERTED IN THE BOOK (Keep cover letters to one page)
Date:
Name of Recipient: Choose one or more: — President Biden, Vice-President Harris, Dr. Jill Biden, Ashley Biden, Xavier Becerra, Secretary of Health and Human Services Nominee
℅ The White House
1600 Pennsylvania Avenue, NW
Washington, DC 20500
Dear —
1) Please read the stories in Tomorrow Was Yesterday — Explosive First-Person Indictments of the US Mental Health System — Mother’s Across the Nation Tell It Like It Is by Dede Ranahan with 64 Co-Authors (book enclosed).
2) Read the Grassroots 5-Part Plan to Address Serious Mental Illness (SMI) and the Extended List of SMI Needs (in the book).
3) Assign a task force to develop a National Plan to Address SMI — like the Covid-19 Plan with detailed goals, structure, and funding.
To date, 25 million Americans have contracted COVID and over 400,000 have died. Hopefully this will be a time-limited health crisis.
Right now, between 11-13 million Americans (and by extension 11-13 million families, maybe 44 million more Americans) suffer from the ramifications of SMI each year. This crisis isn't time-limited.
Our country is being crushed with multiple crises, but our on-going SMI crisis needs to be added to the crises requiring immediate attention.
From Tomorrow Was Yesterday: “As it stands today, the US mental health/illness system is filled with political landmines and gut-wrenching divisions: parents vs. children, peer organizations vs. family organizations, voluntary vs. involuntary treatment concepts, psychiatrist vs. psychologist turf wars, state vs. federal jurisdictions, HIPAA restrictions vs. parental rights, lack of beds vs. incarceration, unions vs. providers, psychiatry vs. anti-psychiatry, civil rights vs. dying with your rights on, NIMBYism vs. housing, traditional medicine vs. holistic medicine, and funded advocacy organizations vs. unfunded grassroots advocacy efforts. I watched my son Pat die because the system is tied up in bureaucratic and philosophical knots.” Dede Ranahan
Thank you for your help.
YOUR NAME
Address
Phone number/email address
If you want a copy of the sample cover letter, email me and I'll send it to you to fill in, print out, and sign.
dede@soonerthantomorrow.com
COMMITTMENTS TO DATE:
ALABAMA
Ruth Griffin
ALASKA
Robin Duffey: President Biden, Ashley Biden
ARIZONA
Joann Strunk
CALIFORNIA
Ingrid Dempsey: Jill Biden
Jennifer Diane: President Biden, Jill Biden, Vice-President Harris
CJ Hanson: Vice-President Kamala Harris
Darlene Merz
Linda Rippee Privatee: Xavier Becerra, Sec't of Health & Human Services, Vice-President Harris, Jill Biden
Dede Ranahan: President Biden, Vice-President Harris, Ashley Biden, Xavier Becerra, Secretary of Health and Human Services
Kat Shultz
Catherine Woodward
COLORADO
Alison Canjar: President Biden
CONNECTICUT
Colleen Lord
DELAWARE
Cheryle Vitelli
FLORIDA
Deborah Knighton: Vice-President Harris
Deborah Krug: President Biden, Vice-President Harris, HHS Nominee Becerra
Gemma Pena
Lori Reho
Sandy Turner: President Biden, Vice-President Harris
Chris Upchurch: President Biden
IDAHO
Angela McCandless
Karena Yachts: Vice-President Harris
ILLINOIS
Penney Jo Dickey: Vice-President Harris
INDIANA
Diann Benefiel: Jill Biden
IOWA
Leslie Carpenter: President Biden
KENTUCKY
Joann Strunk: Jill Biden
LOUISIANA
Tiffany Treadway Morton; President Biden
MAINE
Jeanner Gore: Maine Governor Janet Mills, Jessica Pollard, Maine Director of Substance Abuse and Mental Health Services
Jennifer Johnson: Ashley Biden
Laurie Turley: President Biden; Vice-President Harris
MARYLAND
Amy Swartz Kerr: Jill Biden
Marilyn Marten: President Biden
Laura Pogliano: Dr Jill Biden
MASSACHUSETTS
Robin Carmona Evensen: Jill Biden
Deb Harper: President Biden
Beth Tuleja: President Biden, Vice-President Harris, Secretary Xavier Becerra
MICHIGAN
Kimberley Blaker: President Biden, Vice-President Harris
Therese Paivarinta:
MINNESOTA
Emily Iverson Story: Jill Biden
MISSISSIPPI
Kathy Hilton: Xavier Becerra
MONTANA
Montana Witsend
NEW HAMPSHIRE
Nancy LaBranch: President Biden
NEW JERSEY
Mary Moran
Clara Thomas
NEW MEXICO
Pamela Field: Vice-President Harris
NEW YORK
Deborah Bonneau
Clarissa Cece Crade
Pamela Field: Vice-President Harris
Gail Freedman
Shreya MN: Vice-President Harris
NORTH CAROLINA
Sherri McGimsey
Leah Moran
OHIO
Kelly Montgomery: Jill Biden
Ingrid Silvian
OKLAHOMA
Audrey Adams Auernheimer
Melissa McLemore: Ashley Biden
OREGON
Mary Murphy: Ashley Biden
Sharon Underwood: Amy Klobachar, Surgeon General Nominee Dr. Vivek Murthy, Congressman Peter Defazio
SOUTH CAROLINA
Elaine De Lancey Gilliam
TENNESSEE
Pat Morgan: Dr Jill Biden
Martha Stringer: Dr Jill Biden
TEXAS
Joyce Berryman: Ashley Biden
Marti Cockrell: President Biden
Sarah Leigland
Prissy Snelling: Vice-President Harris
UTAH
Heidi Franke: Jill Biden
VERMONT
Ron Powers
VIRGINIA
Patricia Wood: Xavier Becerra
WASHINGTON
Lyndia Learned Hawkins
WISCONSIN:
Mary Anderson Frey: President Biden
Just downloaded the White House National Strategy for the COVID-19 Response and Pandemic Preparedness (198 pages). It lays 7 goals out in detail. To date, 24 million Americans have contracted COVID and over 400,000 have died. Hopefully this will be a time-limited health crisis.
Right now, between 11-13 million Americans (and by extension 11-13 million families, maybe 44 million more Americans) suffer from the ramifications of SMI each year. This crisis isn't time-limited.
The country is being crushed with multiple crises, but our on-going SMI crisis needs to be added to the crises requiring immediate attention -- a National Plan. It's way past time to ask for a National Plan.
From Tomorrow Was Yesterday: “As it stands today, the US mental health/illness system is filled with political landmines and gut-wrenching divisions: parents vs. children, peer organizations vs. family organizations, voluntary vs. involuntary treatment concepts, psychiatrist vs. psychologist turf wars, state vs. federal jurisdictions, HIPAA restrictions vs. parental rights, lack of beds vs. incarceration, unions vs. providers, psychiatry vs. anti-psychiatry, civil rights vs. dying with your rights on, NIMBYism vs. housing, traditional medicine vs. holistic medicine, and funded advocacy organizations vs. unfunded grassroots advocacy efforts. I watched my son Pat die because the system is tied up in bureaucratic and philosophical knots."
There will never be a better time than now to ask for what we need and deserve. How can we make this request?
I’m pleased to report that Tomorrow Was Yesterday — Explosive First-Person Indictments of the US Mental Health System — Mothers Across the Nation Tell It Like It Is — is doing really well. Thank you to those of you who have already purchased and read our book (65 mothers from 28 states). Thank you to those who have left reviews on Amazon. Reviews help spread the word.
Some exciting new connections are developing from the publication of this book. Too soon to talk about, but more good things might be coming. Keep fingers crossed…
Click on this link to the book’s page on Amazon:
Meanwhile, goodbye 2020. What a year! A friend, just diagnosed with Covid says, “You don’t really have a bubble because people are careless.”
Thanks to my new kitty, Detective Lucas Whiskers, being sick, and getting old/er, I’ve “set up” my simplest Christmas tree ever. In this chaotic 2020 year, simple feels comforting to me. So I'm sending simple wishes to all.
FROM NORTH CAROLINA
Gwendolyn Bartley: “It’s Kind of like a Daily ‘Sophie’s Choice’”
Gwendolyn is the mother of five (now adult) children through the blessing of adoption and natural birth. She is the founder and executive director of Amazing Grace Advocacy, a non-profit that supports families raising children with brain disorders in Concord, North Carolina. Gwendolyn serves on several community, state, and national initiatives to advocate for access to appropriate services for children with serious emotional disturbances (SED).
Sherri McGimsey: “What Would You Do?”
Sherri is a wife, mother of two sons, grandmother, business owners for 39 years, and a national advocate for SMI. Her eldest son, Matt, has schizophrenia. Sherri’s a member of NAMI South Mountains, North Carolina and serves on the NSSC (National Shattering Silence Coalition). She’s a trainer in NAMI’s Family-toFamily class and in the Crisis Intervention Team (CIT) for police and law enforcement. “A Mother’s Prayer for Mental Illness” guides her on this journey.
FROM OHIO
Nikki Landis: “Nikki and Kevin”
Nikki is the mother of five and homeschools her children on a small farm in rural Ohio. She loves to read and learn new perspectives. Her childhood dream was to have a large family, live in the country, and write. She continues to pursue her dreams despite how SMI has affected her life and she encourages everyone to do the same.
FROM OKLAHOMA
Audrey Adams Auernheimer: “For Now I’m Thankful Adam is Alive”
Audrey is the mother of four children, three of whom have been diagnosed with mental illness. Her son, Marty, was diagnosed with schizophrenia at age 22. Her only daughter Candace was diagnosed with depression with suicidal ideation at age 12. Marty died at 28 and Candace died at 26 to suicide. Her 30-year-old son, also diagnosed, lives with her. The youngest son remains untreated and barely functional, mostly due to anosognosia.
FROM OREGON
Carole McAfee: “A Mother’s Fight”
Kecia Bolken Speck: “I’m Never Calling the Crisis Team or the Police Again”
Kecia is the mother of two adult children and currently lives in rural Oregon. She works in pediatric occupational therapy and takes care of her 29-year-old son full-time. Her dreams for the future are to change the education of first responders, to ensure the funding of skilled crisis teams, and to decriminalize serious mental illness. “My family’s lives depend on it. Nobody should ever have to go through this alone.”
Sharon Underwood: “Why Is This Okay?”
Sharon is a single mother of four. Her mentally ill son Tim is her youngest child. Sharon’s been a caregiver for the elderly for over 25 years.
FROM PENNSYLVANIA
Holly Alston: “Mommy Please Clear My Name”
Holly’s son suffered from schizophrenia and other mental health issues. He was in prison for over seven years while his mental health was ignored. When Terrell was in isolation, he would scrape his eyebrows off and pluck out his eyelashes. “He was released from prison 8/8/16 and by 8/20/16 he was dead.”
Mary A. Butler: “Let’s Talk About hopeful Voluntary Admissions”
FROM TEXAS
Joyce Berryman: “Stuck in Texas”
Channin Henry Williams: “I See Change Coming”
After 14 years of giving so much of herself to meet her daughter’s special needs, Channin is now focusing on her husband, hobbies, and finding her way. “Raven left the institution on her 18th birthday. Soon all communication stopped. My greatest nightmare came true. How should a mother like me grieve or even feel? It is my supportive family and faith in Jesus Christ that has given me strength and hope that change is coming.”
FROM UTAH
Heidi Franke: “I Am Livid. Shaking”
Heidi is an RN. She’s been living through the diagnosis of her youngest son’s pervasive mental illness and struggles with addiction. Her goal is to empower parents to speak up to help overcome obstacles to care for their children. “By telling our stories, we give permission to others to start telling theirs.” Heidi makes mending herself a personal daily engagement project “as we must put on our oxygen mask first to help those beside us.”
FROM VIRGINIA
Pat Wood: “Our Son’s Preventable Death”
After his first year of college, Pat’s elder son was diagnosed with bipolar disorder. “His death by suicide at age 38 was the outcome we’d fought against for years and was our worst nightmare come true.” Pat’s younger son also has a mental illness. “There have been many medications, hospitals, therapists, psychiatrists, and less-than-successful battles to get the services my children needed. My younger son’s uncertain future remains my concern and focus now.”
FROM WASHINGTON
April: “Helping Mr. K.”
April is a wife, retired direct marketing creator, and sibling to Mr. K. Her mother died seven years ago with no plan in place for her brother’s care other than the designation of “Social Security Payee.”
Jerri Clark: “My Goal Is Not Happiness but Human Understanding”
Jerri advocates for treatment access in Washington State where she started Mothers of the Mentally Ill (MOMI). She and her husband (married since 1994) have a daughter and two grandsons. Their son Calvin died from suicide March 1, 2019.
FROM MAINE
Jeanne Gore: “We Need A Revolution”
Jeanne is a family member and Coordinator and Co-Chair of the Steering Committee for the National Shattering Silence Coalition (NSSC).
Laurie Turley: “They Should Have Let You Help Me. I Wasn’t in My Right Mind.”
Laurie is a musician, music teacher, wife, mother, grandmother and advocate of “treatment before tragedy.”
FROM MARYLAND
Amy Kerr: “I Feel Incredibly Blessed”
Laura Pogliano: “Zac, My Darling Son” & “Let’s Talk About Real Issues"
Laura is a training and education consultant in Baltimore, Maryland. She lost her only son, Zaccaria, to schizophrenia in 2015. Laura is a former board member of SARDAA (Schizophrenia and Related Disorders Alliance of America) and leads the Maryland SARDAA State chapter advocating for reform and the reclassification of schizophrenia to neurology.
FROM MASSACHUSETTS
Mara Briere: “A Problem Shared is a Problem Halved”
Mara is the mother, aunt, daughter, and sister of adults with serious mental illness. She’s a Master’s Level Certified Family Life Educator. She founded a nonprofit for families uprooted by mental illness, Grow A Strong Family, in order to generate, share, and develop the resources, support, and network that families like hers need and do not have.
Donna Erickson: “What I’ve Learned About Our Broken Mental Health System”
Donna is the mother of a son (age 35) who has a serious brain illness. “As a mental health reform activist, I hope to see much needed major changes for our loved ones. We are long overdue for a better mental health system.”
Deborah Harper: “I Feared He’d Be Blown to Pieces”
Deborah is a teacher, mother, and friend. She is a designer and photographer. She is a Christian/Catholic.
FROM MICHIGAN
Sarah C.: “It Feels Like the State of Michigan Wants Me Dead”
Kimberlee Cooper West: “Walk A Mile in Our Shoes”
FROM NEW HAMPSHIRE
Theresa A.: “You Don’t Matter” & “There’s No Limit to What a Mother Will Do”
Theresa has been a preschool teacher for many years. She lives in New Hampshire with her husband.
Ashley Doonan/Cathie Curtis: “I Am Ashley. I Define Me.”
Cathy’s daughter Ashley fought a good fight to reduce the stigma associated with mental illness in academia, the workplace, the correctional system, and society as a whole. Cathie says, “Although she is no longer with us, I am her voice.”
FROM NEW JERSEY
Julia Gillies: “This is Exhausting”
”I’ve been a mental health advocate in New Jersey for 11 years. I read. I research. I witness the suffering of those with mental illness as a loving mother. I send emails, texts, and letters, and make phone calls. Yet, my cries for help often go unheard. Change doesn’t happen until action occurs to help those suffering with SMI. We must wake up, educate others, and be persistent.”
FROM NEW YORK
Tama Bell: “Nightmares in the Daylight” & “10 Myths Mental Health Officials Tell Us About Our Kids”
Laurie Lethbridge Christmas: “What an Effing Nightmare”
Karen Riches: “Our Pledge”
”I’m a mom. My son meant the world to me. Jacob suffered with serious mental illness. He was diagnosed with schizophrenia. Too bad that my son meant nothing to the medical community. He died because of their beliefs and lack of knowledge about mental illness.”