Leah was born September 13, 1986. She was a miracle baby. I'd already given birth to three daughters and had my tubes snipped after the third. Later, my husband and I decided to reverse my operation. After one tubal pregnancy and a miscarriage, Leah arrived.
Leah had three teenage sisters to love and help care for her. Life was good. I gave Leah many advantages — private pre-school, pre-k, and kindergarten. She struggled in math and reading, so I hired a private tutor. Her grades in math brought up the suggestion to have her evaluated for possible ADHD, but her father refused to let this happen. We divorced after her fifth school year.
In high school, Leah did okay. She loved music, took private lessons in voice, and performed with a music group. After high school, Leah attended community college, and worked at a super market. During her second year of college, things began to unravel. Her first relationship ended, she dropped her classes, and quit her job. She stayed at home and started talking to herself. She called her voices the " people who live in my head."
Even though I'd gone back to school and received a degree in Paraprofessional/Special Education, I didn't see the warning signs. I asked Leah to see a doctor with no success. When she finally begged to see a doctor herself, I took her to a hospital emergency room only to be told there were no beds. This was in Washington State. The ER staff handed me some valium and antidepressants. Leah threw the pills down the toilet, so we went back and they gave us more.
By this time, my whole family was trying to get Leah the treatment she needed. My sister lives in San Marcos, Texas. She told us about a community mental health service there that takes anyone regardless of income or insurance. So, we headed for Texas. Once in Texas, Leah improved a lot. Leah worked in the bakery at a major super market for almost two years, never missing a day of work, often taking last minute shifts for other people. It was hard to think she was ill at this time. We were living with my two older sisters. My oldest sister has bi-polar disorder and with her moods, along with Leah's car breaking down, things began to unravel again.
Leah left home on foot in 90-100 degree temperatures. She returned home with blisters that no one in their right mind could walk on. Another time she left for four months and lived in a tent 20 miles from San Marcos. This was in the winter. She tried to hold onto a job at McDonald's. Her boss wanted to help her and encouraged her to go home. It rains often in the hill country in winter, and some nights Leah tried to sleep sitting up in a plastic tub. McDonald's had a truck stop close by with a bathroom. She was so tired she locked the bathroom door and went to sleep on the floor. The next morning, the truck stop manager told her, "If you ever sleep here again, I'll have you arrested." Leah's little encampment along side an I-35 access road was about a mile from the highway patrol office. They told her she had to move to a campground five miles away to be legal.
The fear that dug into every fiber of my being, was not knowing if my daughter was okay and, if she did come home, how would I protect her? My fear abated when a crisis intervention officer typed a letter on official police stationery saying that Leah was fragile, severely mentally ill, and needed to be held, if found, because she had to take medication.
When she did come home that spring, a judge signed an order that she was a danger to herself. Since then, she's been hospitalized twice. The second hospitalization was voluntary. She's been on many meds that make her worse. Sometimes she'd slap herself until her face was red and swollen. Sometimes, she'd come out of a trance and say, "Mommy, it's not me, it's the voices." I'd try to hold her hands, but she'd ask me to move away because "my hands will bite you."
Now Leah's on monthly shots of Invega and is doing better. It will be a year in November. I have a lot to be grateful for. Her treatment team includes me in everything. Leah is on Medicaid and I didn't have to beg for it. It took a year, but she received services for free, and Johnson & Johnson gave her the meds until Medicaid started.
We are a family working together to help Leah. She gets $470 a month from social security which is not enough to be independent. Young people with serious mental illnesses are handed a huge financial problem. If they can't work, they never get a chance to pay into social security.
Everyone says we are so fortunate here in San Marcos. I agree but we're also held hostage to a place where Leah can get help. San Marcos is away from home and expensive to live in. Half of our income goes to rent. Leah and I share a one bedroom apartment. The rent increases every year by $40. If we could afford to buy a car, I could work evenings but all my energy goes to my daughter.
We appreciate what we have, but I wonder what happened to all the promises for community services after de-institutionalization in 1955? I believe the federal government owes compensation to full-time caretakers who took over the job of hospital staff when they abandoned thousands of people and families. The cost of lives and unmitigated suffering is unknown by any records.