PLEASE JOIN THE CONVERSATION ON MY FACEBOOK PAGE by Dede Ranahan

The following is an ongoing discussion on my personal Facebook page - Dede Moon Ranahan. If you’re on Facebook, please click on my page and join the conversation. Or enter your comments through the comment link below. Or send your comments to me in an email: dede@soonerthantomorrow.com

SMI (SERIOUS MENTAL ILLNESS) ADVOCATES AND SUPPORTERS

GOAL: This effort is short-term. To get SMI recommendations for a national SMI plan before the 2020 presidential candidates (Republican, Democrat, Independent). None of them are currently talking about SMI (not mental health, not drug addiction). SMI. The SMI community is looking for a candidate/s who will champion SMI and its concomitant issues. With adults and children impacted and their immediate families, we represent roughly 72 million people in the US.

THE ASK: That candidates talk about SMI in their campaign appearances and debates and post a national SMI plan on their campaign websites.

To encourage them, we'll be submitting a cover letter, one-page outlined/bulleted plan, references and resources to aid them in developing their plan, and if they will read that far, the full list of 18 topic areas.

RESULTS OF YOUR VOTES FOR THE TOP 5 ISSUES FOR A ONE-PAGE PLAN:
1) Reclassification of SMI as neurological brain disorders
2) IMD (Institutes for Mental Disease Exclusion)
3) HIPAA Reform (Health Insurance Portability and Accountability Act)
4) Continuum of Care
5) Decriminalization of SMI

NOW WE MUST REFINE THIS TOP 5 LIST.
PLEASE ANSWER 1 OR MORE OF THESE QUESTIONS IN A FEW SENTENCES:
1) Why is reclassification of SMI important?
2 )Why is IMD repeal important?
3) Why is HIPAA reform important?
4) Why is a Continuum of Care important?
5) Why is Decriminalization of SMI important?

1) Name one specific action a president can take to advance the reclassification of SMI.
2) Name one specific action a president can take to advance IMD repeal?
3) Name one specific action a president can take to advance HIPAA reform?
4) Name one specific action a president can take to advance a Continuum of Care?
5) Name one specific action a president can take to advance the Decriminalization of SMI.

Thanks, Dede

1. RECLASSIFICATION OF SMI
-Reclassify schizophrenia and related disorders as neurological conditions or neurobiological brain disorders. Eliminate “behavioral health” nomenclature.


2. HIPAA (Health Insurance Portability and Accountability Act)
-Reform current HIPAA laws.
-Present patient and family with a social worker to support the family unit throughout the care process including medication and psychiatric treatment.
-Require mandatory training for everyone in the medical profession about HIPAA and a required test on proven knowledge.
-Develop a federal program for the administration of a psychiatric advance directive (PAD) which includes a universal release of information and designates an agent if capacity is lost. Must include enforcement mechanisms to require mental health/illness facilities to follow the directives.

3. IMD (Medicaid’s Institutes for Mental Disease Exclusion)
-Repeal it.
-To prevent warehousing, use unscheduled check-ups on those receiving services.

4. A FULL CONTINUUM OF CARE
-Early intervention at all stages of illness.
-Provide Inpatient (IMD waivers), Outpatient (ACT, FACT, PACT, AOT, Clubhouses), Housing (full array from locked stabilization to unlocked intensive, medium intensive, peer-run PSH, Asylum).
-Require a psychiatric standard of care for various SMI diagnoses like other medical specialties. Diagnosis should be staged as cancer is.
-Provide more long-term care.
-Remove ER’s as entry for mental health hospitalization. The ER process and chaotic environment are not conducive to the well-being of SMI patients.
-Give federal assistance to states providing supportive housing.

5. DECRIMINALIZE SMI
-Eliminate solitary confinement in jails and prisons.
-Support nationwide civil mental health courts and expand criminal ones that are already established to keep SMI out of jails and prisons.
-Establish mental health courts on a federal level, and coordinate federal courts and state-run mental health facilities.
-Move crimes that SMI commit in the federal system into state courts.
-Provide a digitized system to connect county/hospital medical records to jails and prisons.
-Mandate a way for families to provide medical history to jail/prison doctors to inform treatment.
-Provide uniform psychiatric screening of the incarcerated and use standardized protocols for medication of SMI prisoners.
-Require strict limits on waiting for trial time.

A LETTER TO SHARE OR TO COPY AND PASTE by Dede Ranahan

TO ALL 2020 PRESIDENTIAL CANDIDATES:

I often hear discussions about mental health awareness, but don't hear discussions about serious mental illness (SMI). 
With SMI, (schizophrenia, schizoaffective disorder, bipolar disorder, depression, OCD), some people do not recover and cannot work or live independently. Some are so sick they don't realize they're sick (anosognosia), don't respond to treatment (if they get it), and end up incarcerated, homeless, missing, suicidal or dead.

The SMI population represents roughly 5% (10million) of the mentally ill in the US. And ten times as many people with SMI are incarcerated as are hospitalized. These individuals don't get the attention they deserve and consistently fall to the bottom of the proverbial heap.

If it "takes a village to raise a child," it takes a country to help a "child" with SMI -- parity in mental health care, IMD exclusion repeal (beds), HIPAA reform, housing, hospitalization instead of incarceration, brain disease research, supported education, and on and on. So far, our country is not stepping up. A serious mental illness system does not exist.

The presidential candidate I'll support will have the courage and insight to raise SMI issues and to create a plan to deal with them on a national scale. 

What is your plan for SMI? (Not mental health. Not drug addiction.) I would like to read about it on your website. Thank you for your prioritization of SMI issues.

If you agree, please share widely. Or copy and paste.

#seriousmentalillness #SMI #schizophrenia #schizoaffectivedisorder#bipolardisorder #depression #OCD #parityinmentalhealthcare #IMDrepeal#HIPAAreform #braindiseaseresearch #treatmentnotincarceration#soonerthantomorrow

http//www.bit.ly/soonerthantomorrow

SAMPLE SMI LETTER TO 2020 PRESIDENTIAL CANDIDATES by Dede Ranahan

5/9/19

Presidential Candidate (NAME)
Email or address

Dear 2020 Presidential Candidate (NAME):

I hear discussions about mental health awareness. I don’t hear discussions about serious mental illness (SMI). Many of us, in the SMI community, fear that most focus is given to mental health conditions where people are resilient, can recover, can go to work, and live independently. I appreciate the goal to give hope to these individuals. The story, however, is much broader.

With SMI (schizophrenia, schizo-affective disorder, bipolar disorder, clinical depression, OCD) some people do not recover, and cannot work or live independently. Some are so sick they don’t realize they’re sick (anosognosia), don’t respond to treatment (if they get it), and end up incarcerated, homeless, missing, suicidal or dead. The SMI population represents 4-5% (10 million) of the mentally ill in the United States. And ten times as many people with SMI are incarcerated as are hospitalized. For whatever reasons, these individuals don’t get the attention they deserve and consistently fall to the bottom of the proverbial heap.

My son, Patrick, was one of these individuals.

If it “takes a village to raise a child,” it takes a country to help a “child” with SMI — parity in mental health care, IMD (Institutes of Mental Disease) Exclusion repeal (beds) , HIPAA (Health Insurance Portability and Accountability Act) reform, housing, hospitalization instead of incarceration, brain disease research, supported education, and on and on.

So far, our country is not stepping up. A serious mental illness system does not exist.

The presidential candidate I’ll vote for will have the courage and insight to raise SMI issues and to create a plan/policy to deal with them on a national scale. What is your plan/policy for SMI? I want to read about it on your website.

Thank you for your prioritization of SMI issues.

Sincerely,
Dede Ranahan

www.soonerthantomorrow.com
A Safe Place to Talk About Mental Illness in Our Families
dede@soonerthantomorrow.com
Author - Sooner Than Tomorrow — A Mother’s Diary About Mental Illness, Family, and Everyday Life
(Available online at Amazon and Barnes & Noble)

ADDRESSES: See yesterday’s post for address/email information for 2020 presidential candidates.

THANK YOU PETE EARLEY - BOOKS THAT CHRONICLE MENTAL ILLNESSES AND THOSE IMPACTED BY THEM

Sharing Your Stories: Books That Chronicle Mental Illnesses And Those Impacted By Them
By Pete Earley

To go directly to Pete Earley’s blog to read his full post and to see all photos. Click here.

Posted: 26 Mar 2019 05:19 AM PDT

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“Pat in 1988 before our world came undone.” Author Dede Ranahan’s first book

(3-26-19) I’ll be speaking April 2nd at the National Alliance on Mental Illness Dane County 2019 Awards Banquet and Gala in Madison, Wisconsin. Please support NAMI by attending if you live in the Madison area. 

The 2019 book season is upon us. Here’s a few that have caught my eye. If you have one that you’d like to recommend, please do so on my Facebook page.

Surviving Schizophrenia, 7th Edition, by Dr. E. Fuller Torrey.

Long considered the most comprehensive and authoritative book written about schizophrenia, an updated Surviving Schizophrenia is being released today. It was groundbreaking when it was first published in the early 1980s.  Here’s how my former colleague at the Washington Post, Peter Carlson, described the book’s impact in a 2001 article that documents how this important work helped NAMI become a national organization. If you have schizophrenia, know someone who does, or want to educate yourself about this serious mental illness, this is a must read.

When Laurie Flynn walked into the office of the National Alliance for the Mentally Ill for her first day as executive director in 1984, she found a pile of mailbags, each of them stuffed with letters. It was all because of E. Fuller Torrey. 

Torrey had just published “Surviving Schizophrenia,” a guide for patients and their families. When he appeared on Phil Donahue’s TV show to promote it, he urged people seeking help to contact the alliance, which was then a fledgling organization with fewer than 50,000 members, most of them the parents of mental patients. The result was this avalanche of mail.  

“Nobody had ever said the word schizophrenia on popular television, and people came out of the woodwork seeking help,” Flynn recalls. “For many years, mothers were told they were the cause of the problem, and here comes Fuller Torrey saying, ‘Wait a minute, this isn’t the family’s fault. These are brain diseases.’ Here was a psychiatrist saying, ‘I know what you’re going through because my sister has the problem.’ It’s hard to overemphasize what a hero he was back in the early days.” 

Torrey donated the royalties of “Surviving Schizophrenia” to the alliance and he hit the hustings to organize, helping to build the group into a powerful lobbying organization with more than 220,000 members.

“Weekend after weekend,” Flynn says, “he went out to states where members were organizing chapters and he rallied the troops. Nobody did it better.”

Not everyone lands a huge publisher, which is why I want to mention several books about mental illness that don’t have a large promotional budget and often are not by professional writers. They’re simply poignant tales written from the heart.

Sooner Than Tomorrow: A Mother’s Diary About Mental Illness, Family and Everyday Life by Dede Ranahan

It’s difficult to turn a diary into a book. A writer’s tools, such as pacing, foreshadowing and character development, don’t generally fit in a non-fiction diary form. It’s an especially daunting task for a first time author.  Sooner Than Tomorrow: A Mother’s Diary About Mental Illness, Family and Everyday Life, by Dede Ranahan pulls off that delicate dance. Interwoven with her diary entries are Facebook posts written by her son, Patrick. When this NAMI advocate first started writing her diary on June 15, 2013, she did not know that she would be  chronicling Patrick’s last year. He died on July 23, 2014 in a psych ward where she thought he would be safe.

Because Ranahan wanted to tell her story in context, she includes other events in her diary beside her son’s mental illness. That was a bold move. Some may find that distracting at first, but Ranahan wanted to blend her son’s struggles with the everyday that all of us live. It ultimately gives readers a much fuller picture. You can read more on her blog/website: Sooner Than Tomorrow. 

Here’s an excerpt:

How do you react when your 25-year-old son, during what is later seen as his first acute bipolar episode, kidnaps his teenage sister, drives her to a hospital, and convinces the emergency room staff to admit her because “she’s sick and my parents aren’t taking care of her”?

How do you compute when you arrive at the hospital to rescue your daughter—who has a cold—and you find her hysterical and sitting in a hospital bed? You ask your son, who is staring straight ahead with empty eyes, “Why did you bring your sister here?” 

With logic that reflects his internal confusion, he answers,

“Because I knew I needed help…

How do you advocate when the world sees a bum, and you see the little boy you carried in your womb, nursed at your breast, laughed and played with, and knew in your heart was the world’s greatest child? And you know somewhere, trapped inside his brain, the world’s greatest child is lost and trying to be found.

–Sooner than Tomorrow by Dede Ranahan.

BIPOLAR ME by Janet Coburn

Another blogger turned first time author is Janet Coburn who uses her blog, Bipolar Me, to shine a spotlight on what it is like to have bipolar two disorder. Full disclosure, I’ve not yet read her book because I’m on a deadline writing a new novel, but I have read her blog and put her book on my summer reading list. I am always curious about how individuals with mental illnesses successfully manage their lives. Check out her blog to discover if her writing appeals to you.

After my last (and, I hope, last) major bipolar breakdown, my therapist pointed out that I had a unique opportunity: I could reclaim those parts of my life that had fallen away, or I could leave them behind.

I could choose. That idea was very powerful.

The Light in His Soul: Lessons From My Brother’s Sczhophrenia by Rebecca Schaper with Gerald Everett Jones

The Light In His Soul came out last summer and is still getting tremendous reviews. The story behind the book was first told in an award winning documentary film entitledA Sister’s Call.   It is an incredibly powerful film.

In reviewing the book, Kirkus Reviews noted: “The power of this memoir lies in the way it demystifies mental health issues by examining them from a deeply personal perspective. Individuals and families facing similar experiences will certainly find solace from it… A moving, passionate, personal narrative of trauma and healing.”   

Here is Amazon’s description:

Call Richmond, Jr. went missing. Twenty years later he showed up on a family member’s doorstep. He was homeless, broken, and suffering from paranoid schizophrenia. For the next fourteen years, his sister Rebecca took on the struggle to restore him as they faced the dark traumas and painful memories of their past. The Light in His Soul: Lessons from My Brother’s Schizophrenia is her intimate memoir of helping Call as she learns that his extraordinary gifts are helping heal her and her family. Both Call and Rebecca bring light to the dark shadows of their past.

Sadly, Call Richmond Jr., has passed but his story is forever memorialized.

BREAKDOWN: A Clinician’s Expericne in a Broken System of Emergency Psychiatry by Lynn Nanos

Author Lynn Nanos is a mobile emergency psychiatric clinician in Massachusetts who has written for this blog. See: A Street Social Worker Tells What It’s Really Like.She’s also an active member of the  National Shattering Silence Coalition that advocates for the seriously mentally ill population. Her book uses her personal experiences to tell a much broader story – how our underfunded and broken system is failing those with serious mental illness. Here’s how she explained why she feels so passionately about helping those too often forgotten.

I know there are success stories out there. But as an inpatient social worker, I was alarmed at the extremely high rate of readmission to our units. This is what motivated me to begin writing about what I see daily.

We, or at least, I can’t close my eyes at night knowing that we could, no, we must do better.

I think of a patient on my caseload who was paranoid delusional and was refusing to accept treatment because he did not believe that he was mentally ill. He refused to sign a release of confidentiality for me to communicate with his mother, even though they resided together. She knew he was there, so I just supportively listened to her concerns. I passed these on to the rest of the team, including his psychiatrist.

Shortly after his discharge, he used a knife to stab his mother to death.

When something such as this happens, you have choices. You can pretend these events don’t happen or turn away from them. Or you can roll up your sleeves and begin advocating to improve the lives of the seriously mentally ill population who are the sickest.

I’m in my tenth year as a mobile psychiatric emergency clinician. I’ve rolled up my sleeves.

MUST READS:

In addition, here are four extremely important books that you should read. I give them my highest personal rating. Each has impacted my thinking. Please check them out.

Stories From The Shadows: Reflections Of A Street Doctor by Dr. James J. O’Connell

Insane Consequences: How The Mental Health Industry Fails The Mentally Ill by D. J. Jaffe 

Committed: The Battle Over Involuntary Psychiatric Care by Drs. Dinah Miller and Annette Hanson

No One Cares About Crazy People by Ron Powers 

The post Sharing Your Stories: Books That Chronicle Mental Illnesses And Those Impacted By Them appeared first on Pete Earley.

NEED YOUR HELP. WHICH COLOR DRAWS YOU IN? by Dede Ranahan

COMING SOON! WILL BE ON AMAZON IN PAPERBACK AND EBOOK FORMATS IN TIME FOR MOTHER’S DAY.
I’LL UPDATE HERE.

I’m trying to choose the color for the cover of my book. Which color draws you in — blue, white, or gray? Thanks so much for your help. I have no objectivity about this and appreciate your feedback.

Why the carnation? The carnation is the official flower for Mother’s Day. Pat used to give me and his sisters white carnations on Mother’s Day. White carnations represent pure love. Pink carnations represent a mother’s forever love: “I will never forget you.” My book is dedicated to Pat and his sisters, and to the mothers (millions of them) who fight, every single day, for their children who live with serious mental illness.

P.S. If you receive this post twice in your email, it’s because you’re subscribed to my stories blog and to my diary blog. I try to not duplicate posts often. Thanks for subscribing to both blogs.

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