GOOD AND BAD iN 2020 by Dede Ranahan

I’m pleased to report that Tomorrow Was Yesterday — Explosive First-Person Indictments of the US Mental Health System — Mothers Across the Nation Tell It Like It Is — is doing really well. Thank you to those of you who have already purchased and read our book (65 mothers from 28 states). Thank you to those who have left reviews on Amazon. Reviews help spread the word.

Some exciting new connections are developing from the publication of this book. Too soon to talk about, but more good things might be coming. Keep fingers crossed…

Click on this link to the book’s page on Amazon:

Meanwhile, goodbye 2020. What a year! A friend, just diagnosed with Covid says, “You don’t really have a bubble because people are careless.”

Please stay safe and well in 2021. Over and above surviving, may the new year bring you and your families many blessings. Love, Dede

Please stay safe and well in 2021. Over and above surviving, may the new year bring you and your families many blessings. Love, Dede

PLEASE FORWARD TO THOSE IN YOUR SPHERE OF INFLUENCE by Dede Ranahan

I believe that serious mental illness (SMI) should not be a footnote to other issues, i.e., gun violence, and that it needs to be recognized and addressed as its own issue. I'm reposting the 5 part plan developed by grassroots advocates from across the country. It's not comprehensive but it's a beginning.

Before SMI becomes the victim — responsible for gun violence — and before politicians use it more and more as a scapegoat, please join us. Send copies of this plan to local, state and federal representatives. They need to be educated. They need to step up and help 10 million SMI individuals and families who fight every day for life and death services.

Post your email in the comments section below, or send it to me at dede@soonerthantomorrow.com. I'll send you the cover letter, plan, and additional ideas so you can forward them to those within your sphere of influence.

A FIVE-PART PLAN TO ADDRESS SERIOUS MENTAL ILLNESS (SMI)

FOR ALL 2020 PRESIDENTIAL CANDIDATES

PLEASE ADDRESS THESE TOPICS IN YOUR CAMPAIGN APPEARANCES AND DEBATES

1. RECLASSIFY SERIOUS MENTAL ILLNESS (SMI)) FROM A BEHAVIORAL CONDITION TO WHAT IT IS, A NEUROLOGICAL MEDICAL CONDITION WHY RECLASSIFICATION IS IMPORTANT
Reclassification will unlock more research funding and help eliminate discrimination in treatment, insurance
reimbursement, and the perception of SMI as “behavioral” condition. SMI is a human rights issue. NIMH ranks
SMI among the top 15 causes of disability worldwide with an average lifespan reduction of 28 years.
PRESIDENTIAL ACTION
* Create a cabinet position exclusively focused on SMI.
* Push for Congressional appropriations to include schizophrenia in a CDC program that collects data on the
prevalence and risk factors of neurological conditions in the US population.

2. REFORM THE HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT (HIPAA)
WHY HIPAA REFORM IS IMPORTANT
Overly strict HIPAA laws make it extremely difficult for families and caregivers to partner in the treatment of their loved ones, resulting in important life-saving medical information gaps. By eliminating this barrier, family support will be strengthened, reducing the chance of relapse, homelessness, imprisonment, and death.
PRESIDENTIAL ACTION
* Work with legislators to change HIPAA law to ensure mental health professionals are legally permitted to share and receive critical diagnostic criteria and treatment information with/from parents or caregivers of SMI.

3. REPEAL MEDICAID’S INSTITUTES FOR MENTAL DISEASE EXCLUSION (IMD)
WHY IMD REPEAL IS IMPORTANT
IMD repeal will increase the availability of psychiatric inpatient beds. The IMD exclusion is not only discriminatory of those suffering from neurological brain disorders, it is also a leading cause of our national psychiatric hospital bed shortage. It prohibits Medicaid payments to states for those receiving psychiatric care in a facility with more than 16 beds who are 21-65, the age group with the most SMI.
PRESIDENTIAL ACTION
* Work with legislators to repeal the IMD exclusion.

4. PROVIDE A FULL CONTINUUM OF CARE
WHY A FULL CONTINUUM OF CARE IS IMPORTANT
A continuum of care ensures that SMI patients receive early intervention at all stages of their illnesses, longterm care when needed, and follow-up treatment (medications and therapies) when they’re released. It reduces visits to jails, ER’s and hospitals, homelessness, and morgues. A continuum of care provides life-time management.
PRESIDENTIAL ACTION
* Create federal incentives to states which are addressing a full array of inpatient, outpatient, and supportive
housing care.

5. DECRIMINALIZE SERIOUS MENTAL ILLNESS (SMI)
WHY DECRIMINALIZATION OF SMI IS IMPORTANT
People suffering from other neurological conditions like Alzheimer’s and dementia can get treatment promptly without being kicked out of their homes to wander the streets until they are arrested and put in jail or prison rather than a hospital. Serious mental illness is the only disease where the doors to treatment are shut unless a crime is committed. This is pure and simple discrimination with the disastrous results we see in our country today — homelessness, incarceration, the disintegration of families, and death.
PRESIDENTIAL ACTION
* Work with legislators to change “must be a danger to self or others” criteria.
* Work with legislators to change involuntary commitment criteria, alleviating the subjective nature of “gravely
disabled” and redefining it in objective terms based on scientific medical need for treatment. Psychosis, like a stroke, is a traumatic brain injury and needs immediate treatment for the best outcome.

A LETTER TO SHARE OR TO COPY AND PASTE by Dede Ranahan

TO ALL 2020 PRESIDENTIAL CANDIDATES:

I often hear discussions about mental health awareness, but don't hear discussions about serious mental illness (SMI). 
With SMI, (schizophrenia, schizoaffective disorder, bipolar disorder, depression, OCD), some people do not recover and cannot work or live independently. Some are so sick they don't realize they're sick (anosognosia), don't respond to treatment (if they get it), and end up incarcerated, homeless, missing, suicidal or dead.

The SMI population represents roughly 5% (10million) of the mentally ill in the US. And ten times as many people with SMI are incarcerated as are hospitalized. These individuals don't get the attention they deserve and consistently fall to the bottom of the proverbial heap.

If it "takes a village to raise a child," it takes a country to help a "child" with SMI -- parity in mental health care, IMD exclusion repeal (beds), HIPAA reform, housing, hospitalization instead of incarceration, brain disease research, supported education, and on and on. So far, our country is not stepping up. A serious mental illness system does not exist.

The presidential candidate I'll support will have the courage and insight to raise SMI issues and to create a plan to deal with them on a national scale. 

What is your plan for SMI? (Not mental health. Not drug addiction.) I would like to read about it on your website. Thank you for your prioritization of SMI issues.

If you agree, please share widely. Or copy and paste.

#seriousmentalillness #SMI #schizophrenia #schizoaffectivedisorder#bipolardisorder #depression #OCD #parityinmentalhealthcare #IMDrepeal#HIPAAreform #braindiseaseresearch #treatmentnotincarceration#soonerthantomorrow

http//www.bit.ly/soonerthantomorrow

I AM BROKEN. BEYOND REPAIR - An Anonymous Mother

I watched my son suffer a suicide attempt in January 2016. I sat by his side every day. At least he was treated well in Ohio. How I wish we could have stayed there.

In Florida, they Baker Acted (an emergency, involuntary psychiatric examination) him three times. Twice to Gracepoint where he was severely over-medicated. I visited him daily and watched him turn into a zombie. I was on the phone, constantly, advocating and seeking help. Using all my energy for him. His problems consumed my life. I reached out to everyone. In spite of losing myself entirely to try to help him, he’s only received harm and abuse in Florida.

My son was arrested in July 2016. It was a needless arrest that never would have happened had Gracepoint not destroyed his brain and injected him with 400 mg Abilify upon discharge. For two weeks after the injection, he suffered insomnia, severe akathisia, anxiety, paranoia, and hallucinations. He hardly ate or talked and paced the floors day and night.

After his arrest, I went to bed. No longer able to live my life. No longer part of my family’s life. No longer in my granddaughters’ lives. No longer able to function. Because my son suffered, I suffered. I lost everything. I spent the only energy I had advocating and visiting him in jail, or talking with him daily on the phone.  

He’s in worse shape, today, due to all the trauma he’s suffered by the hands of those who call themselves healers. Why are they even in the business? It’s pure corruption here in Florida.

Now, it’s Boley housing and St. Anthony’s Hospital. No parent should have to watch his/her son suffer at the hands or such tormentors. How can they call themselves healthcare professionals or even doctors? All they did was harm him. From 7/26/18 to 8/8/18 he was living in pure hell — a torture chamber. It was completely unnecessary. Didn’t need to happen. Again, I had to exhume some sort of strength to try to advocate and be there every day. It was futile. I couldn’t stop the abuse. 

The week of 7/20/18, my son was cut off 500 mg Clozapine. Cold turkey. Boley did nothing to help him. Boley Baker Acted him on 7/26/18 and the hospital cut off the 225 mg Effexor. Cold turkey. The same day, he was given a forced injection of Geodon/Ativan. On 7/27 he was given a forced injection of Haldol/Ativan. On 7/28 he was given a forced injection of Zyprexa/Ativan and left alone in isolation to suffer seizures all day long. The nurse said he was just attempting to choke himself. She said he was spitting on the med techs. No, he was trying to talk. White foam flew out of his mouth as he tried to speak but only could groan. This is inhumane.

At 5:30 P.M., my husband, Vince, and I arrived for visitation at the psych unit. An RN sat with us to explain that our son was “in crisis” and she couldn’t bring him out to the cafeteria in his condition for a visitation. She mentioned she’d considered a private room for our visitation but didn’t think I’d be able to handle it. I said, “I can handle it.”

She asked, “Do you hear that person screaming?”

I responded, “I don’t hear screaming, I hear someone groaning.”

She stated that our son was groaning, that he’d been in isolation, and needed to remain there. I insisted we see him. When we walked into the TV room, our son was seated in a chair surrounded by med techs. His body was rigid, his jaw clenched, his back arched, his head thrown back with eyes rolling back in his head, and white foam was pouring out of his mouth. Every time he struggled to breathe, I heard gurgling sounds. I touched his hand and he grabbed mine. He tried to turn towards me and speak. His lips moved with his jaw clenched tightly shut. Only groaning noises were coming out along with a lot of white foam. 

One med tech had to stand in front of him with a towel, constantly wiping up the white foam. The white of his right eye started bleeding in 2 areas, filling his eye with blood. I asked what was happening. Everyone stood there wide-eyed. Then the RN told me I had to leave. I said, “No! My son needs immediate medical attention!” I feared for his life. She told me she would get an ICU nurse to assess him. She returned with the ICU nurse and we had to leave. Our son was immediately transported to the CV-ICU unit. I was thinking that the saliva he’d been producing since early morning was actually seizure activity and was concerned about brain damage. 

Around 6:00 P.M., in the CV-ICU, a Bi-pap machine was applied to help our son breathe. He was sedated with an IV drip of Precedex and PRN Ativan. The next day he was transferred back to 6th floor medical unit. Vince and I stayed with him all day.  He couldn’t open his eyes, talk, or feed himself. Nurses began administering oral insulin. They asked us, “Has your son always had diabetes?” We answered, “No, never.”

None of us would escape all that unscathed, but my son had to endure 11 more days of suffering — time in restraints and more drugging — even Thorazine. All he needed was his Clozapine. This is all harm to the patient. Oh, but wait, he’s not a patient. He’s a consumer. Oh, so that’s how they get away from the Hippocratic oath. He’s just a consumer — not a patient — not even a person with the right to “life, liberty and the pursuit of happiness.”

People continue to turn their heads in apathy and indifference while there is an American holocaust going on. No one will speak up. I’m not a doctor. I’m not an attorney. I’m a nobody. Despite all my efforts, my son keeps receiving abuse from the mental harm system. It’s not healthcare.

I am broken. Beyond repair.

Photo credit: josef.stuefer/flickr

Photo credit: josef.stuefer/flickr

HAPPENING NOW: MY SON'S MISSING IN SF by Laural Fawcett

6/19
I want to show you, that even though I've had terrible news and once again my son's been released from jail to the streets of San Francisco and it rips my heart to the core, I'm going to dry my tears away and simply do the next logical thing. I'm trying to get him into a facility through a new friend I've made. It's a residential facility in Stockton.

There are good people in the system who will listen and work with us, we must educate and coach and endure and reverse engineer or it will never change. My son is not an animal. He's lost on the streets. Maybe he'll call me if I'm lucky. I will be strong but not silent.

Laural

Laural

6/20
Update on my missing son. I'm hanging out with good friends today while I do employment related errands to get my EMT career going. Ironically, my friend's father had an older brother like my son. He was murdered some years ago while in psychosis and on the streets. The family, much like mine, was desperate to provide care.

But we must focus on life. We must fight for justice. I'm working on getting paperwork in order from San Francisco county jail so, if found, I can get my son to the Ever Well residential facility in Stockton, thanks to manager Paul Cumming. I need help from San Francisco area friends to locate my son. 

Info about my son: He's very tall - 6 foot 6. His name is Shaylon Hovey,  pronounced Shaelen. He has big, crystal blue eyes and may be in the SF Tenderloin/Mission area.

Shaylon loves food. So that's a good bribe or conversation starter (haha). He's stated to his public defender that he wants to go into residential treatment. He's had a Haldol shot recently and needs another shot July 6. I have a power of attorney for his health care and legal and financial. So I, Laural Fawcett, hereby give permission to all advocate friends associated with Facebook groups such as CCA to make personal contact with my son, Shaylon Hovey, in order to assist him in getting medical treatment and care for his disability. He has a diagnosis of Paranoid Schizophrenia and co-occuring substance abuse disorder.

Thank you, friends. Your support in thought, heart, and deed is priceless. If seen, please call 559-960-6426.

Shaylon and Laural

Shaylon and Laural

HOLDING IT TOGETHER - Excerpt from My Memoir

September 13, 2013

This afternoon, a new woman joins our Family Mental Illness support group. She's in tears telling us about her son and daughter. They both have schizophrenia.

When she was 47 -- she's now 73 -- Helena left her native country, Czechoslovakia, and came to the US "to escape communist oppression and to escape my husband, who also has schizophrenia."

When she first asked permission to emigrate to the US, Helena was denied because she didn't speak English and didn't appear to be employable. "But I persisted and, at last, we were allowed to come here. I came with my two young children, our few clothes, and not a penny of my own."

In time, Helena learned English and procured employment in an assisted living facility. Now, her daughter has returned to Europe and her son lives in the Bay Area in low-income housing. "My son's been with me for the last week," she says, "and sometimes I'm afraid of him. He's struck me in the past. But I have to let him come. I'm all he has and, because I was raised in an orphanage, I know how it feels to have no door open to you. I can't close my door to him."

Helena refuses to call the police when her son becomes violent because "in my old country, police made irrational arrests of innocent people."

Helena thinks she has enough money to stay in her rented townhouse for a couple more years. "I may have to move and find a two-bedroom apartment for my son and me to live in. I may have to look for a job. I could hostess in a restaurant. I love my son and there's no help for people with illnesses like his. I'm angry and frustrated. I've been trying to hold it together for a long time. I can't do it anymore."

Photo Credit: Sachin SharmapurikarFlickr.com 

Photo Credit: Sachin Sharmapurikar
Flickr.com