ROCK BOTTOM IS NOT DIGNITY. HELP US by Julie Fast

There is much confusion around mental health and when someone will ask for help. I often hear this: "He will get help when he is ready," or, "She will finally say yes to meds when she realizes the damage bipolar is doing to her life." 

No. This is not how it works with SMI — serious mental illness. 

Mental health is not addiction. The idea that a person has to hit rock bottom before they will ask for help is one that might work for alcohol and drug abuse — but it never works for SMI. Here is why: 

1. Most people with SMI have a lack of insight (anosognosia) that comes and goes depending on our symptoms. I fight this lack of insight regularly and I'm someone who has enormous insight as compared to others. If I suffer with lack of insight, imagine what it's like for people who haven’t spent the past 20 years on management. 

2. Denial is not a part of SMI when a person with SMI is really sick. Denial implies that a person knows what is happening, but chooses to ignore the signs. For example, a person with a severe alcohol dependency might have total knowledge that if he keeps drinking, he is going to ruin his liver, but he keeps drinking despite this knowledge. There is no judgement here, but this is denial. In SMI, a person can have teeth rotting out of their head, long, dirty fingernails, matted hair, and a sleeping bag for a bed and still say, “There is nothing wrong with me. You are the one with the problem.” 

There is no rock bottom for us as rock bottom requires self-awareness that is simply not available when we are sick. 

Don't expect this from someone with SMI. Those of us with bipolar disorder, schizoaffective disorder, and schizophrenia need people and a society to make decisions for us when we are too sick to ask for help. Without this, our rock bottom is death. 

3. The whole idea of individual rights is skewed when it comes to SMI. The idea of rock bottom is based on the idea that individuals are always able to make a choice about life or death situations. I completely, and I do mean completely, disagree with this and believe in society over the individual when it comes to mental health treatment. We are not in our right minds when we are sick. The concept of individual rights doesn't apply to someone who is not in his or her right mind. 

If you love someone with SMI, you have tough decisions to make. Waiting until that person sees the light, knows they need help, asks for help, or finally hits rock bottom means you might see the person you love lose everything or die. 

Get involved, change HIPAA, think of our society and work with me to get help for people at home and on the streets who are too sick to get help. I hope that people at the ACLU, people in the anti-psych movement, and those who believe in individual rights above society rights can see that the world this creates is not sustainable. 

I want society to make decisions for those of us with SMI. I believe in required mental health treatment, anti-psychotic shots, and safe places for people with SMI to live. 

We can work together to create long term treatment facilities and homes for people who are ill. They were called asylums for a positive reason — a place of refuge. We need them again. Rock bottom is not dignity. Help us. 

Julie+A.+Fast+Rock+Bottom+Blog+2018-1.jpeg

The situation in these photos is what led me to write this piece. I was in my car and looked over and saw a man fall and hit his head. He then threw up. No one else stopped and I questioned if I wanted to get involved. Portland, Oregon is completely out of control when it comes to homelessness. The majority on the streets here are seriously mentally ill. 

I stopped and helped the man. I knew not to touch him, but I talked to him and said I was calling 911. The dispatcher asked me to see if he was alive and asked me to stay until the paramedics showed up. I found out that his name was Scott and he was 30.  He was living on the street. I could see his garbage bag with a CD player and his shoes. As I talked to him, he rolled in a ball under his shirt. 

When help arrived, they didn’t look at me, thank me, talk with me, or give me any indication that they needed information from me. They are so used to this that they acted as though someone who looked like he was dying on the street was normal. I’m not judging them. Just observing how truly terrible it is in Portland. 

The young man tried to punch and kick the paramedics and they said he had to calm down. He finally did and accepted help. The cost of this one incident will run in the thousands of dollars. The hospital will not be able to do anything due to HIPAA laws and Scott will be released back to the street in a few days. I wouldn’t be surprised if I saw him again today. 

I have to cut my emotions off from my work. That is what I did in this situation. I turned off my heart and let my mind do the work that was needed. Someone had to help and this time it was me. 

Note: Julie is a writer at BP Magazine for Bipolar and a blogger at Psychology Today.

IT FEELS LIKE THE STATE OF MICHIGAN WANTS ME DEAD by Sarah C.

I am at my wit’s end. I can't take it anymore. I have a mentally ill son, Christopher, who will be 17 in February. I was a victim at 13, and he was born at 14. I read so much when I found out I was pregnant — everything that would tell me how I should have the baby and where there would be help. I thought I was doing the right thing. Fast forward. He’s now at a residential treatment facility. Since he was seven or eight, my son’s been receiving treatment for mental illness. It was a battle every day to make sure nothing made him mad, and when he did get mad, we followed safety plans to a “T.”

Christopher has bipolar disorder, ADHD, intermittent explosive disorder, and possibly, and probably, more. When he gets mad, he physically assaults people and it happens out of no where. He's gone after his infant siblings, strangers in the street, classmates, and teachers. He will attack anyone who’s around. He says, “I will kill everyone.” His main desire is to stab people to death. He attempted to stab me. He hid in the house with a butcher knife my grandmother used and forgot to lock back up.

We’ve exhausted all mental health services, and I mean all. I even drove him out of state to be hospitalized. The residential treatment facility is the last thing that can help, but I can't afford it. Child Protective Services, therapists, other family members, and medical providers all agree he needs this, but insurance won't pay for it unless he is a drug user. 

So here we are. All involved agree my son cannot be in my home. It's too dangerous for me and his younger siblings. He’s strong and over six-feet tall. I love him, but I'm deathly afraid of him. So are my two daughters who he attempted to sexually molest as well as physically assault. The state of Michigan would help me pay for his treatment, but here’s the catch: I'm being charged with child abuse and child neglect. Authorities say it’s the only way to keep everyone safe and to get him help. They’ve put me on a child abuse registry. I won’t be able to go back to working with children (I previously worked in an elementary school.) I can't go on field trips with my other children because my name is on that list. My trial isn't until January 10. The attorney they gave doesn’t seem to care about my right to a fair trial. He's only showed up for two hearings, talked to me less than 90 seconds each time, and has never looked at my son’s medical documents and other evidence that I carry with me to every hearing. 

January 1, 2019: I just now looked at my mail that didn't come until late yesterday evening. There is a letter from the court. It says a pre-trial management conference was scheduled for 12/18/2018 and that all witness lists and evidence were due by 12/21/2018. My attorney has none of this information and I'm being informed by mail that wasn't sent out until 12/28/2018 (stamped on the envelope). 

To make matters worse, the state promised me they wouldn't involve my rapist/abuser, a man I’m greatly afraid of. They said it would be in my son’s best interest not to involve him as he has a lengthy record. They lied. The letter I just opened says they sent a copy stating my name, my information, and the date for trial, to this man. He ruined my childhood and essentially scarred me for life. I never put him on my son’s birth certificate. I am scared to death, angry, and hurt. It feels like a set-up. 

Everyone I talk to feels bad but no one can help. The problem is legislation. I've contacted all local officials, from my local state representatives to the governor’s office. However, because of elections and terms being close to an end, no one could help. Here I am. I’ve never been in trouble with the law in my life. Now I’m being persecuted for having a mentally ill child, and not being able to afford the $300-a-day treatment he needs. Seems there’s no way to help a parent get the treatment her mentally ill child needs without charging the parent (me in this case) and labeling her as a child-abuser. The state’s stripping me of my parental rights, and sending me a bill for my son’s expenses while he’s in their care.

I have a therapist and, after he looked at all my documents and heard the story, he was in shock and felt bad. He said, “Nothing can be done.” It's a Catch-22. Usually, he tries to help his patients work toward a goal, but he doesn't have a goal for me to strive for. He can only allow me to vent which, at this point, isn't enough. God help me. I don't know what to do anymore. It feels like the state of Michigan wants me dead.

Note: Sarah cancelled her court appearance for 1/10/2019. She says, “I'm too afraid to go to trial Thursday and risk being found by my childhood abuser. My concern is his being in front of me at the trial, possibly following me home, or getting my address while at the trial. I was told by the judge's secretary they would ‘try not to disclose my address.’ However, I don’t put it past the courts that they would hand him a document with my mailing address on it, or say it out loud during the trial.”

Sarah and Christopher

Sarah and Christopher

NEED YOUR HELP. WHICH COLOR DRAWS YOU IN? by Dede Ranahan

I’m trying to choose the color for the cover of my book. Which color draws you in — blue, white, or gray? Thanks so much for your help. I have no objectivity about this and appreciate your feedback.

Why the carnation? The carnation is the official flower for Mother’s Day. Pat used to give me and his sisters white carnations on Mother’s Day. White carnations represent pure love. Pink carnations represent a mother’s forever love: “I will never forget you.” My book is dedicated to Pat and his sisters, and to the mothers (millions of them) who fight, every single day, for their children who live with serious mental illness.

P.S. If you receive this post twice in your email, it’s because you’re subscribed to my stories blog and to my diary blog. I try to not duplicate posts often. Thanks for subscribing to both blogs.

SOONER THAN TOMORROW COVER CONCEPT 2_to Dede.jpg
SOONER%2BTHAN%2BTOMORROW%2BCOVER%2BCONCEPT%2B1_to%2BDede.jpg
SOONER THAN TOMORROW COVER CONCEPT 3_to Dede.jpg

A HAPPY STORY TO END 2018 by Kathy Day

Remember the homeless kid I wrote about who had a really bad episode outside my apartment? The cops refused to take him to the hospital because he would, likely, be released. 

Two months ago he had a similar episode. I hadn’t seen him since. 

This A.M., Nick showed up at my door. Clean cut. Calm. He said, “I’m on meds and living in a group home a couple towns over.”

Omg! He looked so good. 

He said, “The second episode made me realize I needed help. I went to the ER and asked to go to inpatient.”

He was an in-patient for a month. While there, he was connected with outpatient services and placed in a room and board home. He has 60 days clean.

Bless his heart. He looked so good and said, “I’m happy.”

I love happy follow ups.

Read Kathy’s story about Nick, September 19, 2018 — The “Right” to be So Ill

Nick holding an Alcoholics Anonymous book and his 30-day sobriety chip.

Nick holding an Alcoholics Anonymous book and his 30-day sobriety chip.

TIME TO GET GUARDIANSHIP by Sherri McGimsey

There came a point in Matthew’s illness that his doctor flat out said, “It’s time to get guardianship.”

I drove down the mountain from the veteran’s hospital and started applying for guardianship that same day. It was rough. The tears, the uncertainty, and the sadness were heavy. I want to thank everyone who helped me when I walked into the courthouse and asked, “How do I get guardianship of our son?”

The doctor had been telling us we would have to do this, but it’s a difficult decision to make for an accomplished adult. It’s heart-breaking to stand nose to nose with a veteran with serious mental illness and take his rights away. He’s survived so much and still is, but we weren’t going to let our son die with his “rights on.”

Anosognosia, also called "lack of insight," is a symptom of severe mental illness. It impairs a person's ability to understand and perceive his or her illness. It’s the single, most prevalent reason why some people, with schizophrenia or bipolar disorder, refuse medications or do not seek treatment. Our son has anosognosia.

(Anosognosia according to Wikipedia: Anosognosia results from physiological damage to brain structures, typically to the parietal lobe or a diffuse lesion on the front-temporal-parietal area in the right hemisphere, and is thus a neurological disorder.)

Double click on the link below if you want to better understand the impact serious mental illness has on families, especially mothers.

Sherri’s YouTube video

Matthew

Matthew