AN EXTENDED LIST OF SMI ISSUES THAT NEEDS TO BE ADDRESSED by Dede Ranahan

This list represents brainstorming ideas of advocates from across the country. They’re individuals, families, journalists, and professionals who are living/working with SMI. They have in-the-trenches experience. The list presents a partial picture of the depth and breadth of SMI issues in 2019. If you’d like a copy of this list and the 5-part plan posted yesterday, send me an email and I’ll send the documents to you. dede@soonerthantomorrow.com Thanks for your help.

1. RECLASSIFY SERIOUS MENTAL ILLNESS (SMI) FROM A BEHAVIORAL CONDITION TO WHAT IT IS, A NEUROLOGICAL MEDICAL CONDITION

2. REFORM THE HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT (HIPAA)

  • Present patients and families with a social worker to support the family unit throughout the care process, including medication and psychiatric treatment.

  • Require mandatory HIPAA training for everyone in the medical profession and mandate a test on proven knowledge.

  • Develop a federal program for the administration of an advance directive (PAD) which includes a universal release of information and designates an agent if a patient’s capacity is lost.

3. REPEAL MEDICAID’S INSTITUTES FOR MENTAL DISEASE EXCLUSION (IMD)

4. PROVIDE A FULL CONTINUUM OF CARE

  • Provide inpatient care (IMD waivers), outpatient care (i.e., AOT, Clubhouses), and housing ( a full array from locked stabilization to unlocked intensive, medium intensive, peer run, PSH, asylum).

  • Require a psychiatric standard of care for various SMI diagnoses like other medical specialties.

  • Require prescriptions based on need not ROI for the insurance industry

  • Remove ER’s as entry for mental illness hospitalization. The ER process and its chaotic environment aren’t conducive to the well-being of SMI patients.

5.DECRIMINALIZE SERIOUS MENTAL ILLNESS

  • Eliminate solitary confinement in jails and prisons.

  • Support nationwide civil mental health courts and expand criminal ones that are already established to keep SMI out of jails and prisons.

  • Establish mental health courts on a federal level, and coordinate federal courts and state-run mental illness facilities.

  • Move crimes that SMI commit in the federal system into state courts.

  • Mandate a way for families to provide medical history to jail/prison doctors to inform treatment.

  • Fund a digitized system for medical records in counties/hospitals to jails so information can be transferred immediately upon arrest and incarceration.

  • Provide uniform psychiatric screening of the incarcerated.

  • Use standardized protocols for medication of SMI prisoners.

  • Require strict limits on waiting for trial time.

6. PAY ATTENTION TO SUPPORTIVE HOUSING

  • Provide 24/7 supervised housing for those who cannot live independently.

  • Provide defined levels of support built around a person’s needs, especially long-term care.

  • Clarify Olmstead for SMI. Lease restrictive care isn’t always least expensive or best.

  • Examine, don’t ignore, a person’s ability to handle and benefit from a less restrictive setting.

7. REVAMP INVOLUNTARY TREATMENT

  • Use lack of insight (anosognosia) and grave disability as criteria for determining involuntary treatment.

  • Establish a federal standardized “need for treatment” involuntary commitment law.

  • Base restrictive settings on actual abilities, not wishful thinking or one-track plans.

8. INCLUDE EDUCATION

  • Require mandatory, institutionalized education about SMI for judges, sheriffs, attorneys, district attorneys, law enforcement, and first responders.

  • Require units of SMI education for educators — preschool through university.

  • Revamp Crisis Intervention Training and expand training to all counties.

  • Provide a health proxy form for college students to allow them to release medical information and name who can take care of them in a crisis.

  • Hold universities accountable and required to connect students to crisis intervention, especially during medical leave.

9. GIVE INCENTIVES

  • Incentivize the expansion of medical schools to graduate more psychiatrists, child psychiatrists, internists with psychiatry specialties, psychiatric nurse practitioners and physician assistants.

  • Allow loan forgiveness for providers treating SMI.

  • Give incentives for rural psychiatrists.

  • Incentivize more long-term treatment/stabilization of SMI.

  • Give incentives to psychiatrists to accept health insurance, especially Medicaid.

10. EXPAND ASSISTED OUT-PATIENT TREATMENT (AOT)

  • Federally clarify AOT and create a federal model for AOT law.

  • Offer AOT immediately to everyone upon diagnosis.

11. IMPROVE HOSPITALS

  • Build regional federal hospital for patients who cannot be treated in their home state’s hospitals because of lack of beds.

  • Improve reimbursements to hospitals which lose revenue on SMI patients.

  • End hospital discrimination against SMI “violent” patients and those “difficult to discharge.”

12. INCREASE RESEARCH AND EPIDEMIOLOGY

  • Fund NIMH research specifically for SMI.

  • Establish a Disability Advocacy Program for legal services for SMI when counties/states fail to provide long-term support services or when insurance/managed care and Medicaid fail to cover/pay for long-term supported services and treatment.

  • Pursue better national epidemiology studies for people with SMI.

  • Establish a federal law that requires states to track each SMI diagnosis with bad outcomes like death, homelessness, and incarceration.

13. REVISIT PARITY

  • Clarify parity for SMI and include Medicaid and Medicare in parity law.

  • Enforce violations against parity law.

14. ADDRESS SOCIAL SECURITY AND DISABILITY INCOME ISSUES

  • Change the way social security income for the disabled is taken by states when a patient is admitted to state operated mental health institutions, residential care facilities, and hospitals.

  • Increase disability income to a level where a person can survive and maintain reasonable housing.

16. CREATE PSYCHIATRIC CAMPUSES

  • Build psychiatric campuses with multiple levels of care, supportive housing from most restrictive to least restrictive, and separate independent living apartments.

  • Provide on-campus coffee shops, gyms, recreational facilities, and gardens where people with SMI could work with support as needed.

  • Provide substance abuse treatment services, AA or NA meetings.

OUR 2020 GRASSROOTS FIVE-PART PLAN TO ADDRESS SMI UPDATED by Dede Ranahan

This plan was developed by dozens of SMI individuals, families, professionals, journalists, and other advocates from across the country. The five issues included in the plan were voted on from a long list of priorities as top priorities. If you’d like a copy of the plan, a cover letter, and an extended list of SMI needs, email me: dede@soonerthantomorrow.com. I’ll send you the documents so you can forward them to those within your sphere of influence — local, state, and national.

As the number of candidates in the 2020 presidential election cycle continues to decline, it’s important to thank those who’ve dropped out but developed good plans that include SMI — Steve Bullock, Kamala Harris — and to refocus our efforts on the remaining candidates — Republican and Democrat. Right now Buttigieg and Klobuchar have good plans. Warren and Booker are working on plans. The White House will be hosting a summit on Transforming Mental Health Treatment to Combat Homelessness, Violence and Substance Abuse on December 19. Thank you for your help.

2020 GRASSROOTS FIVE-PART PLAN
TO ADDRESS SERIOUS MENTAL ILLNESS (SMI)
(Updated December 3, 2019)

FOR ALL 2020 PRESIDENTIAL CANDIDATES
PLEASE ADDRESS THESE TOPICS IN YOUR CAMPAIGN
 APPEARANCES  AND DEBATES


1. RECLASSIFY SERIOUS MENTAL ILLNESS (SMI) FROM A BEHAVIORAL CONDITION TO WHAT IT IS, A NEUROLOGICAL MEDICAL CONDITION.

WHY RECLASSIFICATION IS IMPORTANT
Reclassification will unlock more research funding and help eliminate discrimination in treatment, insurance reimbursement, and the perception of SMI as “behavioral” condition. SMI is a human rights issue. NIMH ranks SMI among the top 15 causes of disability worldwide with an average lifespan reduction of 28 years.

PRESIDENTIAL ACTION
* Create a cabinet position exclusively focused on SMI.
* Push for Congressional appropriations to include schizophrenia in a CDC program that collects data on the prevalence and risk factors of neurological conditions in the US population.

2. REFORM THE HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT (HIPAA)

WHY HIPAA REFORM IS IMPORTANT
Overly strict HIPAA laws make it extremely difficult for families and caregivers to partner in the treatment of their loved ones, resulting in important life-saving medical information gaps. By eliminating this barrier, family support will be strengthened, reducing the chance of relapse, homelessness, imprisonment, and death.

PRESIDENTIAL ACTION
* Work with legislators to change HIPAA law to ensure mental health professionals are legally permitted to share and receive critical diagnostic criteria and treatment information with/from parents or caregivers of SMI.

3. REPEAL MEDICAID’S INSTITUTES FOR MENTAL DISEASE EXCLUSION (IMD)

WHY IMD REPEAL IS IMPORTANT
IMD repeal will increase the availability of psychiatric inpatient beds. The IMD exclusion is not only discriminatory to those suffering from neurological brain disorders, it is a leading cause of our national psychiatric hospital bed shortage. It prohibits Medicaid payments to states for those receiving psychiatric care in a facility with more than 16 beds who are 21-65, the age group with the most SMI.

PRESIDENTIAL ACTION
* Work with legislators to repeal the IMD exclusion.

4. PROVIDE A FULL CONTINUUM OF CARE

WHY A FULL CONTINUUM OF CARE IS IMPORTANT
A continuum of care insures that SMI patients receive early intervention at all stages of their illnesses, long-term care when needed, and follow-up treatment (medications and therapies) when they’re released. It reduces visits to jails, ER’s and hospitals, homelessness, and morgues. A continuum of care provides life-time management.

PRESIDENTIAL ACTION
* Create federal incentives to states which are addressing a full array of inpatient, outpatient, and supportive housing care.


5. DECRIMINALIZE SERIOUS MENTAL ILLNESS (SMI)

WHY DECRIMINALIZATION OF SMI IS IMPORTANT
People suffering with other neurological conditions like Alzheimer’s and dementia can get treatment promptly without being kicked out of their homes to wander the streets until they are arrested and put in jail or prison rather than a hospital. Serious mental illness is the only disease where the doors to treatment are shut unless a crime is committed. This is pure and simple discrimination with the disastrous results we see in our country today — homelessness, incarceration, the disintegration of families, and death.

PRESIDENTIAL ACTION
* Work with legislators and others to change “must be a danger to self or others” criteria.
* Work with legislators and others to change involuntary commitment criteria and redefine it in objective terms based on scientific medical need for treatment. Psychosis, like a stroke, is a traumatic brain injury and needs immediate treatment for the best outcome.

Note: Tomorrow I’ll post the extended list of recommendations.

REAL SOLUTIONS FOR OUR MENTAL HEALTH CRISIS by Steve Bullock (Presidential Candidate)

Presidential candidate Steve Bullock is the two-term, Democratic Governor and former Attorney General of Montana. The following is his plan for mental health/illness care. It’s published on his website. https://stevebullock.com/mental-health/

Governor Steve Bullock’s plan touches on the prioritized issues addressed in the *2020 GRASSROOTS FIVE-PART PLAN FOR SERIOUS MENTAL ILLNESS (SMI) developed by dozens of SMI individuals, families, professionals, and journalists from across the country. Sooner Than Tomorrow welcomes mental health/illness plans from all 2020 presidential candidates.


REAL SOLUTIONS FOR OUR MENTAL HEALTH CRISIS

Addressing our Mental Health Crisis

Every year, over 40 million adults in America will experience a mental illness,1 yet over half of those who have an illness don’t receive treatment.2 That’s unacceptable and we must do better. Steve will prioritize expanding access to and ensuring affordability of mental health care.

As a Governor, Steve knows how just how challenging it can be to change the culture around mental health, particularly in our rural and tribal communities. That’s why Steve made record investments in Montana’s mental health system, expanding crisis intervention and treatment and doubling the number of Medicaid substance use treatment providers.

Providing Coverage for Mental Health
─ Ensure ​funding for treatments ​so mental health options are available to every American living with a mental illness.

*2020 GRASSROOTS FIVE-PART PLAN: PROVIDE A FULL CONTINUUM OF CARE

  • ─  Individual circumstances often warrant different treatments. Steve will ​provide a range of housing options for those who need support to remain as healthy as possible. ​These housing options include:

    • ─  Independent living with case management.

    • ─  Small congregate group living homes where individuals can socialize

      and learn skills for independent living.

    • ─  Clubhouse models.

    • ─  Ensure services at multiple levels of care at psychiatric assisted living

      campuses on mental health institutes, from secure and acute facilities to

      independent living apartments.

    • ─  Supported housing with onsite case management.

    • ─  Scatter site housing with periodic case management.

  • ─  The government should also not withhold funds for potentially life-saving medical options. That is why Steve will also work to increase the number of beds available for hospitals for patients with mental illnesses.

─ Alarmingly, the number of beds available for mental health patients has declined significantly. This not only diverts resources but has forced patients to wait in emergency rooms, or even jails, which are not equipped to handle these individuals.3

1 ​https://www.nimh.nih.gov/health/statistics/mental-illness.shtml
2 ​https://health.usnews.com/conditions/mental-health/articles/what-mental-health-statistics-can-tell-us

3https://www.pewtrusts.org/en/research-and-analysis/blogs/stateline/2016/08/02/amid-shortage-of-psychiatric-beds-mentally-ill-face-long-waits-for-treatment.

  • ─  In 2016, 10x more people with serious mental illnesses were in jails or prisons instead of state mental hospitals. That needs to change.4

  • ─  Steve will work with Congress to allocate the funds necessary to fully equip hospitals with the beds they need.

*2020 GRASSROOTS FIVE-PART PLAN: REPEAL MEDICAID’S INSTITUTES FOR MENTAL DISEASE EXCLUSION (IMD)

─ Steve will enable ​Medicaid funds to be used for in-patient mental health treatments​, repealing the Medicaid Institutions for Mental Diseases (IMD) exclusion to help ensure mental health parity.

  • ─  HHS has moved towards a waiver system that allows some states to get a limited exception to this rule. This is not enough as it still requires significant work to get a waiver and can be reversed.5

  • ─  Removing this waiver would allow more individuals to access mental health treatment.6

  • ─  Steve will direct HHS to update regulations to make it easier to have a waiver on IMD in the short-term, and work with Congress to repeal the IMD exclusion permanently.

  • ─  Part of adequately addressing mental health needs is ensuring that people have access to comprehensive and affordable insurance. ​That is why Steve has released a full plan to increase healthcare coverageHighlights of the plan include:

    • ─  Provide a ​public option to improve access and ensure competition in the marketplace and for those Americans who live in states without Medicaid expansion.

    • ─  Ensure more families can access care by ​automatically enrolling those who are Medicaid eligible or eligible for a 100% cost subsidy on the ACA exchange.

  • ─  Establish ​Mental Health Parity for Medicaid​.
    ─ Steve will work with Congress to ensure mental health parity in Medicaid by

    expanding the Paul Wellstone and Pete Domenici Mental Health Parity and Addiction Equity Act of 2008.

    Ensuring Adequate Funding

  • ─  Increase ​funding to mental health providers, medical schools and universities, and ​other medical education institutions (e.g., those issuing psychiatric certifications) ​that are graduating psychiatrists, family practitioners, and other medical professionals who can help address mental health issues in our country.

    ─ Improve directed financing for allied mental health professionals and encourage pipeline programs at community colleges as well as in structured programs for layperson training.

    4 ​https://www.treatmentadvocacycenter.org/key-issues/bed-shortages
    5 ​https://www.ajmc.com/newsroom/hhs-lifting-imd-exclusion-for-medicaid-payment-for-inpatient-mental-health-treatment 6 ​https://www.healthaffairs.org/do/10.1377/hblog20190401.155500/full/

  • ─  Steve will also work to increase the number of people graduating with a dual degree in psychiatry and internal medicine. This enables primary care physicians to be qualified to provide mental health treatment as well.

  • ─  He will also set aside funding for ​psychiatric certification programs for advanced registered nurse practitioner (ARNP’s) and physician assistants (PA’s).

  • ─  Steve will work with Congress to increase funding.
    ─ Create the “Rural Practitioner Loan Forgiveness Program” to provide ​student loan

    forgiveness for mental health professionals who work in rural communities for five years.

  • ─  Similar to the Teacher Loan Forgiveness Program, mental health professionals who practice in rural communities for 5 years would have their student loans forgiven.

  • ─  In particular, outreach will focus on students who are from rural communities and left for education.

  • ─  The lack of mental health professionals in rural areas is an urgent crisis, with an estimated 65% of rural counties not having a psychiatrist.7

  • ─  Steve will work with Congress to pass this priority.

  • ─  Raise Medicare ​reimbursement rates for mental health treatments.

    • ─  If we want to get serious about addressing mental health, we need to raise reimbursement rates for psychiatric services so Americans can get the help they need.

    • ─  Steve will work with Congress to allocate additional funds.

  • ─  Increase funding for ​school-based mental health​, including through the expansion of School-Based Health Centers (SBHCs) to ensure trained professionals are available to

    assist existing staff.8
    ─ Steve will seek Congressional funding for additional programs.

*2020 GRASSROOTS FIVE-PART PLAN: RECLASSIFY SERIOUS MENTAL ILLNESS (SMI) FROM A BEHAVIORAL CONDITION TO WHAT IT IS, A NEUROLOGICAL MEDICAL CONDITION

  • ─  Push the National Neurologic Conditions Surveillance System (NNCSS) to reclassify serious mental illnesses as a neurological medical condition, enabling more research funding and eliminating discrimination in treatment and insurance reimbursment.

    • ─  Currently, serious mental illnesses are classified as a behavioral condition, an outdated classification that ignores science.9

    • ─  This would enable the CDC to spend more money on this research, particularly from the 21st Century Cures Act.

    • ─  Steve will support efforts to have the WHO reclassify this.

      7 ​https://www.cnn.com/2018/06/20/health/mental-health-rural-areas-issues-trnd/index.html 8 ​https://www.hrsa.gov/our-stories/school-health-centers/index.html
      9 ​https://www.politico.com/story/2019/01/05/schizophrenia-brain-disease-1059386

Creating the Right Culture for Prevention and Treatment
─ Bolster early intervention efforts to prevent or delay the development of more serious conditions and the need to focus on children through school-based screenings and treatment.
─ Steve will work with HHS, the Department of Education, and advocates to introduce more school-based programs to improve mental health. Long-term, he will work with Congress to allocate necessary funds for this vital program.

  • ─  Support the Federal Communications Commission’s efforts to ​create a new

    three-digit hotline number, similar to 911, for suicide prevention resources.

    ─ Steve will ask HHS and the Domestic Policy Council to prioritize this initiative and ensure it is completed within his first year in office.

  • ─  Increase ​suicide prevention efforts ​in the United States through improved training, creating suicide prevention programs for vulnerable populations, and reducing the stigma of suicide through public information campaigns.

    • ─  Suicide is at its highest level, with 47,173 deaths by suicide in America in 2017. 10 We need to take immediate action to address this.

    • ─  This is particularly alarming for our veterans, ​active-duty service members, guardsmen, and reservists​, where every day, approximately 20 veterans lose their life to suicide.11

    • ─  Steve would have the HHS convene advocates and industry experts to develop policy recommendations that HHS and Congress can act on. He will also have HHS and the VA coordinate on a solution to this.

    • ─  To read more about Steve’s efforts to combat veteran suicide, visit Steve’s veterans plan here​.

  • ─  Expand the existing Report on the Impact of Programs Serving Patients with Mental Illness ​under the 21st Century Cures Act to make recommendations to Congress on how best to improve care for patients with mental illness and avoid fragmentation and duplication of services.

    ─ Steve will direct HHS to broaden the report to include these elements.

    Supporting Treatment

  • ─  Invest in ​community treatment centers for mental health. ​One solution will not

    work for every community in our country, which is why we need to ensure that we expand and fund more Community Health Centers around the country.

    • ─  Not only do these centers meet the needs of the Americans in their community, but can be a significant savings to the taxpayer as well.12

    • ─  Steve will work with Congress to further fund these initiatives.

*2020 GRASSROOTS FIVE-PART PLAN: REFORM THE HEALTH INSURANCE PORTABILITY AND ACCOUNTABILITY ACT (HIPAA)

  • ─  Allow doctors to ​provide the right treatment to patients with severe mental health illnesses by modernizing the Health Insurance Portability and Accountability Act

    10 ​https://www.nytimes.com/2019/03/07/us/deaths-drugs-suicide-record.html
    11 ​https://www.stripes.com/news/us/va-reveals-its-veteran-suicide-statistic-included-active-duty-troops-1.533992 12 ​http://www.nachc.org/about/about-our-health-centers/what-is-a-health-center/

─  Allow doctors to ​provide the right treatment to patients with severe mental health illnesses by modernizing the Health Insurance Portability and Accountability Act (HIPAA) to ensure the best treatment options for patients. (Aligning 42 CFR Part 2 with the HIPAA Privacy Rule to allow sharing of information in critical circumstances.)

  • ─  HIPAA is important to protect patients’ privacy. But for some patients with serious mental health illnesses, it can make it difficult for families and caregivers to determine the right treatment for their loved ones.13

  • ─  Changing this would also make tele-health more effective for Americans with mental health illnesses as it would allow doctors to communicate with loved ones if deemed necessary.

  • ─  Steve would work with legislators to change HIPAA law to enable mental health professionals to share and receive critical diagnostic criteria and treatment information with/from parents and caregivers of Americans with serious mental illnesses.

  • ─  Expand use of ​Assisted Outpatient Treatment (AOT) ​to ensure all treatment options are available and patients can receive assistance wherever they need it.

    ─ Steve will work with Congress to incentivize corrections to apply for AOT for mentally ill prisoners who are being released and allow families to petition the court for this.

*2020 GRASSROOTS FIVE-PART PLAN: DECRIMINALIZE SERIOUS MENTAL ILLNESS (SMI)

  • ─  Decriminalize schizophrenia so that treatment is available to Americans who need it.

    • ─  Right now, treatment is available if there is a “danger to self or others,” which prevents help from being given when people need it most. Earlier treatment can prevent illnesses from ever getting to a “danger” level.

    • ─  Steve will work with Congress to change the criteria for getting help.

  • ─  End​ ​solitary confinement ​for people with serious mental illnesses.

  • ─  Reform civil commitment laws ​to ensure they protect patient rights but also enable

    Americans who need help to get it.

    • ─  Some serious mental illnesses affect the frontal lobe, so people may not know

      they need assistance. In some of these situations, being able to work with civil

      courts and hospitals to identify these people and get them assistance is critical.

    • ─  In many situations, judges cannot even consider patients’ prior history when

      making a ruling.

    • ─  Steve will have the HHS convene leaders on this issue to provide guidance for

      states looking to modify laws.

  • ─  Conduct ​random audits for parity requirements ​for mental health coverage​.

    ─ Steve will direct the secretary of the Department of Labor (DOL) to conduct random compliance audits to identify system-wide themes in noncompliance to help increase global compliance.

  • ─  Promote ​Workforce Training Programs ​through direct and indirect subsidization of training programs at the federal and state level.

    ─ Steve will work with HHS to focus funds on this.
    13 ​https://www.asam.org/advocacy/advocacy-principles/standardize-it/confidentiality-(42-cfr-part-2)-new

─ Ensure federal funding ​is available for standalone mental health facilities.

Accomplishments
As Governor, Steve has prioritized policies to improve mental healthcare access for all

Montanans.

  • -  After passing the Health and Economic Livelihood Partnership (HELP) Act, an innovative approach to Medicaid expansion, an additional 96,000 more Montanans now have healthcare. Montana’s uninsured rate has dropped from a staggering 20% in 2013 to 7% today (DPHHS).

  • -  Made record investments in Montana’s mental health system, expanding crisis intervention and treatment, and doubling the number of Medicaid substance use treatment providers (DPHHS).

  • -  Set up the nation’s first multi-payer Project ECHO for behavioral health, to dramatically increase access in rural communities to integrated behavioral health treatment by providing front-line clinicians with the knowledge and support they need to manage patients with mental health and substance use treatment needs (DPHHS).

  • -  Provided mental health parity to give equal treatment for physical health, mental health conditions, and substance use disorders in insurance plans. This will leverage the private insurance market to help integrate behavioral and physical health care in Montana.

  • -  Invested in suicide prevention efforts for veterans, American Indians, and youth.

  • -  Opened opportunities for all Montanans who served in uniform to receive mental health

    counseling.

PAID FOR BY BULLOCK FOR PRESIDENT

Printed in House

Steve Bullock

Steve Bullock

GETTING OUR 2020 GRASSROOTS PLAN OUT THERE by Ellie Shukert

Dear friends and fellow advocates,

I've been sending the Grassroots 2020: 5-Part Plan for SMI to presidential candidates and others. I got a real response from Liz Warren (1st class postage, signed) in the mail. Today, I opened an e-mail from her campaign people posting her various plans, including her Behavioral Health Coverage Transparency Act: This act would hold insurers accountable for providing adequate mental health benefits and ensure Americans receive the protections they are guaranteed by law.

Please let me know if we receive anything from other candidates, besides a general mention of mental health. Ellie

Ellie’s reply to Elizabeth Warren:

Thank you so much for your plan for the Behavioral Health Coverage Transparency Act. 

Families are so tired and discouraged because they can't get help for loved ones with serious mental illness. It's heartbreaking to see the ongoing deterioration of their mental health until they end up wandering aimlessly in the streets, victimized by predators or jailed and imprisoned. 

The revolving door of a psych ER doesn't help (some who do enter seeking help or are brought there by police are told to take an aspirin and leave). Over the years, even though there is more and more demand with each new generation, psych beds have disappeared. When relatives advocate for psychiatric care and more beds, we're told that hospitals are not required by law to treat mental illness, that insurance won't cover it, that they can't find staff to take of care patients with mental illness, that even if the mental illness is very serious, like schizophrenia with paranoia, that if they are adults, they must give consent, which they won't do, not knowing they are delusional and fearing everyone.

It's as if there’s a game of musical chairs going on and the seriously mentally ill don’t find seats to sit on — they don’t understand the game or how to compete for seats — and they've fallen right through the floor into our gutters. 

Department of Public Health Services, hospital administrators, insurance companies, MediCAL, and state programs say there is no money for SMI but we spend even more as taxpayers on insane trips back and forth to jails and psych ERs, on police calls and emergency services, and non-profit agencies scattered all over who give directives the SMI can't follow. If families try to bring a SMI relative into care we can be prosecuted for violating their civil rights. The truth is that, even if people with SMI are adults, some can be as helpless as babes, hallucinating, starving, and using city sidewalks as toilets because they literally have no place to "go." 

I'm in San Francisco and the city spends millions cleaning up fecal matter and urine in the wee hours of the morning because all that human waste is a public health threat. The sanitary workers have to wear special gear because they can't risk breathing in the contaminated spray from water hoses. Drug dealers prey on the SMI promising quick fixes. Needles and paraphernalia are everywhere. 

Care for the mentally ill must be part of our healthcare plan, just like all the other illnesses that afflict us.  For sure, there is no health at all without mental health —losing your sanity leads to all kinds of other biological illnesses as well.  Treatment, follow-up care, and subsidized supportive housing will go a long, long way to helping SMI people reach some semblance of a normal life.  We pay for that or we pay for ineffective agencies, so-called community health clinics, exacerbated illnesses, incarceration of the SMI, not to mention the heartbreak of everyone affected — and everyone is affected one way or another. Every year we don't address the issue more and more SMI people will be added to the ranks of the homeless and imprisoned.  

Any more details you can work out for the Behavioral Health Coverage Transparency Act will be most welcome. Thanks to you and your staff for the work you're doing to make life healthier and more productive for all Americans. 

NOTE: Sooner Than Tomorrow welcomes reports of SMI plans from all presidential candidates and other influencers.

Ellie and her family: Andy, Jay, and Jonny

Ellie and her family: Andy, Jay, and Jonny