IT'S COMFORTING TO KNOW THAT YOU JUST GET IT (PART I) by Anonymous

January 27, 2019: On Friday the hospital social worker called. We had a plan set in place for my son's release. He was supposed to go to a residential living/treatment facility, but this morning, I spoke to his nurse and she said he's set for release tomorrow and she doesn't know if they’ve found a place for him yet. Due to not having insurance, she said, “There could be a problem.” This is a completely different story from the conversation with the social worker on Friday.

This was a shitty decision to have to make — to say my son can't come home because he won't stay med compliant and because I'm afraid of him. I was sad, but relieved that he would be in a safe place getting treatment and, after 10 years (two years dealing with the mental health care system), he and our family would be able to breathe. I can't take a breath to relax, even when he's in the hospital, because I’m still dealing with red tape BS.

Ug. Twice, on this Sunday morning, I’m told there’s no residential treatment facility available because my son doesn't have insurance. “You can just let him go to a homeless shelter if you’re afraid." 

So, this "mama bear" lost her stuff. The social worker put in an emergency call to my son's psychiatrist. He called back right away and began the usual "blah blah blah." I kept pushing, telling him what my son and family have been through — beatings from cops, sleeping with a gun in his bed that we had no idea he had — and everything we’ve seen.

Finally, the doctor said he could petition the mental health court to get him into the state hospital. We’ll have to go before a judge, my son, and his public defender and tell them everything from the beginning until now. The doctor said, “It's not a guarantee. The judge may deny your petition. Are you and your family willing to do this? Because it's hard. Your son will be medicated, probably calm. In the hospital, he's not nice or happy to take meds, but he's doing it.”

I said, “My family is ready to face this to get him the consistent long-term help he needs.”

Since every thing changes every day, with every conversation, with every person you speak to, I'm waiting for another phone call telling me something completely different. I'm so pissed. It's hard enough for a family to deal with a loved one with mental illness who has zero insight into his brain disease. Then, when you finally are able to get him to a hospital for help, you have to deal with the red tape, the social workers, and the nurses who all tell you something different.

I'm a strong woman but I'm mentally exhausted. I'm sorry. My friends and family really don't get the ups and downs we go through as caregivers. When someone says, "I feel your pain," I need to know that you do. I don’t like to hear that anyone else is suffering like me or my son — I wouldn't wish this life on anyone — but It’s comforting to know someone really has an understanding of mental illness and that you just get it. May the force be with all of us.  

My son one year before college graduation.

My son one year before college graduation.

MY SON, WITH SCHIZOPHRENIA, REMAINS MY HERO - by Tamara Lee

I spoke with my son Elliott last night. He was a little discouraged that he spent his birthday and Christmas and New Year’s Eve in jail this year.

Elliott has one roommate who is there for allegedly raping a man at gunpoint and just had nine embellishments added. One is a RICO (racketeering) charge. Another roommate is there for allegedly murdering someone. His own mother is testifying against him for the state.

So here is my son, with schizophrenia, sharing a cell with two people most of us wouldn't want to share a neighborhood with and he’s still in good spirits. He’s not delusional at the moment and is in much better shape than he was last year at this time. The state’s providing him with his shots and on time. We’ve learned to take this day by day. Every night he calls me and I always pray for him and the other inmates I’ve gotten to know. Some write to me and some I buy things for because their families have abandoned them. My son has shown me a world I never knew existed. He has grown my heart in ways I didn't know it could grow.

Elliott is my Daniel who lives in the lion’s den. He lives with hardened criminals — some have killed multiple people — and he does it with no fear. He actually moves past no fear to sympathy and empathy for many of them. He gives them his commissary when they first come in, makes sure everyone has coffee, and helps them in any way he can. He surmounts his own pain to help others. I can't imagine what his life is like, and I can’t imagine how I would handle the situation but he does it with such grace. He amazes me with all he’s been through. He amazes me.

Elliot remains my hero — he’s still the bravest person I’ve ever met. Our children, with broken minds, are beautiful souls in so many ways. If only the world could see…

Read Tamara’s post on this blog, “One Day at a Time,” September 20, 2018, in the archives on the right.

Read Tamara’s blog, Health Mind Ministry. Click here.

Elliott working on a helicopter when he was a helicopter mechanic in the US Marine Corp.

Elliott working on a helicopter when he was a helicopter mechanic in the US Marine Corp.

PLEASE GIVE YOUR LEGISLATORS A COPY OF MY BOOK, BREAKDOWN by Lynn Nanos

While I was working as a social worker on an inpatient psychiatric unit, I became disillusioned and shocked at the extremely high rate of readmissions by patients. Even though the typical length of stay lasted less than a week, it seemed as though I was caring for the patients on a long-term basis. Whenever they returned, we picked up where we had left off since they were last discharged. 

I learned if they followed through with the previous recommendations made by the psychiatrist, nurse, and myself. The recommendations included taking their prescribed medications, attending structured therapeutic groups, attending appointments with their psychotherapists, psychiatrists, nurse practitioners, and rehabilitative outreach workers. Sometimes they were expected to access government benefits, such as food and shelter, by completing applications.

I often encouraged patients to use their state-funded Department of Mental Health (DMH) rehabilitative outreach workers as much as possible. These workers were expected to help their clients access housing (e.g., 24-hour supervised group residential programs), vocational services, transportation, and outpatient treatment providers. And I listed these services whenever I recommended DMH and offered applications to patients. 

As I revisited the patients revolving through the door of our broken system in mobile emergency services, I caught a glimpse of how seriously mentally ill patients on inpatient might be worse off than when I was working there. Recently, a social worker and friend who works on inpatient psychiatry expressed her belief that DMH should be doing a lot more to resolve homelessness. I agree with her. Her patients tell her that their DMH case managers tell them, “We don’t help with housing.”

Really? Disillusionment sets in again. If they don’t help with housing, then what does DMH help with? Without supportive and supervised housing, seriously mentally ill people will inevitably have difficulty taking care of themselves, leading to further hospitalizations. Instructing your clients to go elsewhere for help with housing is not acceptable. DMH is supposed to care for and protect the most severely ill. Yet, they’ve fallen short. 

I wrote the book, Breakdown: A Clinician’s Experience in a Broken System of Emergency Psychiatry, to expose the injustices that I’ve seen in the field. Breakdown closely exposes barriers to patients getting the help that they need. The shortage of inpatient beds, increased rates of criminalization, overly restrictive involuntary hold criteria, premature inpatient discharges, and insufficient means to ensure that patients adhere to their outpatient treatment plans make for a broken system. Consequently, too many patients end up homeless, jailed, harming themselves, harming others, or even dead.

My book educates the public about the plight of those who need the most help. Increased awareness of a problem tends to inspire change. My greatest hope is that my book motivates people to advocate for legislative improvements of the system. Please tell your legislators about Breakdown and give it to them. 

Click on link below to access Lynn’s book on Amazon:
Breakdown: A Clinician’s Experience in a Broken System of Emergency Psychiatry

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