Hope you have a good weekend everybody!
HAPPY PIC
Photo credit: Marisa Farnsworth
Your Custom Text Here
Photo credit: Marisa Farnsworth
Hope you have a good weekend everybody!
Once upon a time, when Casey was very sick and demonstrating symptoms of his illness in the courtroom, his overwhelmed public defender started defending Casey by speaking out on an entirely different case. I raised my hand and said, "He has the wrong file, Your Honor."
A large bailiff came near to me so I apologized and slunk down. When his defender began speaking again, it was as if he was speaking from a routine script with no sense of what was happening to this beautiful young man's life. My son was disappearing right before our eyes.
I raised my hand again and said, "He has schizophrenia, Your Honor."
The large bailiff came and stood in front of me again, this time with his arms crossed in front of him. I apologized a second time and watched as this amazing judge got it. The prosecutor finally got it, too, and came to speak with me. I asked, "Why do they prosecute patients for displaying symptoms of their illness?" He put his head down and shook it.
One day in our trip down behavioral lane. I remember every one of them.
Casey Alan Campbell Age 5
Casey Alan Campbell age 23
October 29, 1985 - October 1, 2009
Those beautiful days!
Our fairytales did not end well.
But, oh Dede, the beautiful days we had with these amazing loves are forever.
So loving and aware of others.
I sometimes looked at Casey and thought to myself,
Where did you come from, you beautiful-hearted little soul? 💖
Diane
Dear Senator Harris,
I want to thank you for your robust response in regard to Health Care. I believe you when you say you will fight to protect and improve health care for Americans via improving the ACA as well as other efforts.
One thing you wrote caught my eye. "I’ll also continue to fight for robust federal funding of scientific research to cure our rarest and most complex diseases." I'd like to address a disease that is not terribly rare, but it is complex and contributes to homelessness and the criminal justice system in Los Angeles and other urban areas. That disease is schizophrenia.
My son, Josh, had his first break when he was a senior in high school. He had been on a high success trajectory--most valuable player on his swim team, co-captain, AP and honors student with a high GPA, active socially, and so on. However, he gradually started retreating and acting bizarrely until one day I got a call from the police saying he was trespassing, defecating in someone's back yard, and I should come immediately to see the wounds on his arms and legs.
You can imagine the terror I felt, and have been feeling ever since that fateful call in 2009. Because his first hospitalization was a short two weeks, and every subsequent hospitalization has been shorter; because his poor judgement has led to a series of stays in Twin Towers (LA County Jail Medical Unit); and because even court mandated treatment has been insufficient, today he is out of treatment, off medication, and wandering the streets in search of cigarette butts he can smoke the ends of.
Schizophrenia has been a puzzling disease for centuries. It's been noted in many cultures, and it's been responded to in a myriad of ways. Some cultures elevate a person with schizophrenia to visionary shaman. Others provide hospitalization and supervision until the patient has stabilized and can realize a reasonably rewarding life. Our culture has been sorely lacking in our response.
There is still not a cure, and I believe it is time that we work for a cure. We've managed to make great strides in treating cancer, heart disease, and AIDS -- three fearsome human diseases. But we haven't yet found a cure for schizophrenia. There are hundreds of people with schizophrenia living on the streets because they cannot function independently, whether treatment is offered or not. These people resist treatment, and their resistance is certainly frustrating, but it is built in to the disease as a symptom called anosognosia, in which the brain does not understand that its function is compromised.
Great strides are being made in understanding the disease, thanks to President Obama's push towards researching the brain and its functions. Light is being shed on possible causes and information about how the brain works is slowly being disseminated through the culture to anyone who wants to learn about it.
I hope you and your staff will become champions of curing schizophrenia. So many of our citizens are affected by it. A cure represents a triumph over a centuries-old, and possibly a millenniums-old scourge of mankind.
Thank you for your concern.
Sincerely,
Diane Rabinowitz
Josh
Photo credit: Marisa Farnsworth
Hope you have a good weekend everybody!
Your son-in-law's grilling steak for the family because we're celebrating the birth of our daughter's second child this past weekend. He looks for the missing steak knives in your cupboard because he knows there should be more. You quietly tell him those knives are impounded at the police station.
Even though the moment passes and he graciously nods his head, the reminder that this is one more celebration your son cannot join in kind of puts that familiar weight on the joy. Sorrow and joy are constant company.
Photo credit: "I Miss You" by bubblegumgirlz
flickr.com
Photo Credit: Marisa Farnsworth
Still sweethearts after all these years...
Hope you have a good weekend everybody!
So here's the deal.
It's baffled me, for over 35 years of OCD (obsessive-compulsive disorder), why family members and even family doctors don't get this disorder. It seriously stumps me. How tough is this?
I understand research continues on the exact cause and cure of OCD, but can't people make the stretch of compassion about the anxiety and — yes, as we know and are truly self aware of — the odd rituals and obsessions? We are the first to say it.
I used to ask audiences and classes of mine, "Have any of you had a panic attack?" Eighty to ninety percent or more would answer "Yes."
"Okay, take that feeling and multiple it times three. Sometimes all day long".
They'd get that part but why all the shame, blame, and criticizing from family? Is it just too hard for them to see you in pain? Is it scary to them?
Bottom line: all we want is a daily reprieve and a little encouragement to get there. Even the smallest daily win, over any OCD behavior you challenge in yourself, should get a "good job!" Even if someone doesn't understand it. That's called basic compassion and kindness in the midst of struggle.
Or, am I'm asking for egg in my beer? (which I have no idea what that means)
Wikipedia: Egg in beer refers to the practice, literally or figuratively, of cracking a raw egg into a glass of beer. One Pennsylvania source refers to this as a "miner's breakfast". The term is also used metaphorically, commonly as "what do you want, egg in your beer?", implying that the listener already has something good but is asking for undeservedly more.
Â
Photo credit: Keggs & Eggs- Williwaw
And then I stood up to speak. I was afraid I wouldn't find my voice due to the tears that I couldn't hold in all day whenever I approached anyone personally. But I held strong and the tears held back.
I spoke, folks. I shared our story and told them that our story isn't unique. It's the story of countless families who care and try to get help for their SMI (seriously mentally ill) loved ones but are told the only recourse is to call 911. Then, when they call 911, the police arrive and say, 'We can't do anything unless we actually witness threats of danger to self or others."
The family's left with two options — see their kid escorted off the property to become homeless and vulnerable; or wait it out until the next violent assault and hope they live through it so they can advocate for treatment. And then, when that assault happens, (for many it inevitably does), the police arrive and the parents beg them to take their kid to the ER. Now they can see the threat of danger to self or others, right? Instead, the police say, "No, we're sorry, but now your kid has committed a felony and we have to take him into custody."
So begin the weeks and months of jail time, and waiting for yet another psychiatric evaluation despite the years of documented medical reports and hospitalizations. Finally, the treatment starts along with the parole and the recovery while the court ordered medication lasts. Then the court order is over, the son or daughter goes off medication and it all begins again. Over and over, from ground zero, the same scenario.
I told them all of it, folks, and said, "Families need to be listened to when they know their kids need treatment."
Photo credit: Brigitte E
flickr.com
Photo Credit: Dede Ranahan
Keukenhof Gardens.
Hope you have a good weekend everybody!
Laura Pogliano
Let's talk about real issues.
Stigma exists, but it's not what keeps people from care. In many cases, a person with a severe mental illness has anosognosia (the inability to recognize illness). When a person has psychosis, he isn't really too worried about stigma.
If you eradicated stigma tomorrow, literally erased it from every mind and heart in the universe, you'd still have the following:
You just wouldn't have stigma.
Visit An Organization for Caregivers - Click on link below.
Parents For Care