DEAD BOY WALKING by Crystal Burks

When a mother's heard she's having her first son, it's a joyous event. I'd talk to my in-utero infant all day expecting his arrival in early 2000. He was a millennium baby — healthy pregnancy, healthy birth and hit all his milestones. He didn't even have any terrible two's. But about four, something happened. Something took my happy, charismatic, easy-going child and left a haunted, tortured, angry little boy.

We all know the next steps: intake, psych evaluation, diagnosis, prescriptions. It seemed to work for a while but it was intake after intake, drug after drug, and he was finally given the labels of ADHD, Bipolar Disorder, Oppositional Defiance Disorder, and the missing daddy syndrome (not a DSM5 diagnosis but, in the world of social work, a label for majority of low income boys).

I had no family and four children by the time my son was eight. At that point, he was so out of control I'd have to restrain him. He was kicked out of schools, daycares, and play groups and kids constantly taunted him. Then there were the voices. The voices told him to steal, climb through  windows, and beat on his sister. More drugs.

By the summer of 2008, my son was so dangerous to himself and his siblings, he was taken to a group home. Worst choice.  There, he was physically and emotionally abused. I yanked him out and off the countless drugs they had him on.

Fast forward to 2014. He began smoking cigarettes and marijuana, and stealing to get the money for his habits. He became abusive to his siblings. I continued to report this to the various agencies yet all they could say was, "He isn't dangerous enough to remove. However, if something happens to his siblings, you will be charged with failing to protect them."

I was told, if I wanted him removed, to call CPS. So I did, and they laughed at me and opened a case against me for neglect. I had a total of four open cases against me due to his behavior, yet he still wasn't dangerous enough. He was arrested for domestic violence against his little brother and was sent back home two days later. My two younger children were terrified of him at six-feet-three-inches and 350 pounds . He threatened to burn his sister with cigarettes, to kill his family, and slice my throat, and still he wasn't dangerous enough. My daughter now suffers from depression, anxiety, and low self esteem from the emotional abuse she's endured.

My son was arrested six times for possession and theft and all the system did was hand me a court date. It basically told my son that he was above the law and that if I or his step-dad attempted to physically discipline him, he should call the police. I was told by the court that he had to get enough arrests or seriously hurt someone before law enforcement would step in. This monster-sized kid, with a really bad anger problem, was shown that he could do what he wanted and face no consequences.

Finally, in March of last year, my teenage boy was recognized as needing services. He'd refused his medications and had a psychotic break. I admitted him to an emergency stabilization unit in town and then he was sent to a psychiatric hospital, and then to an inpatient facility for two months. In the meantime, I'd lost countless jobs, dropped out of college five times in six years, and fell deep into debt and depression. All the while, the law and therapists threatened me that I'd be liable for anything that happened.

He went through the first round of treatment only to come home and return to his same ways. He smashed a two-foot-by-two-foot hole through his bedroom wall. He went back for treatment to an expensive group home that gave him unlimited food and activities — basically, a vacation. He returned home and started misbehaving again. He refused his medication, got high and abused his siblings. I lost another job because of depression. Back to a high-priced group home with food, cable games, and outings. A home where somebody thinks two months of playtime is rehabilitation. A home where somebody thinks that's enough time to undo all the damage.

My son will be 18 in less than a year. As it stands, he has no high school credits, no real job history, and no motivation to do anything but drink, get high, and run around with drug dealers. Everything I've tried has been a waste of time and money. Had somebody listened to me years ago, had the system used less stringent criteria for the removal of an at-risk youth, had the funding been in the right place instead of on ball parks, my son may have a had a chance. They may have been able to help him and he may have had a future. But no, the system created a monster who lives by no rules, and has to answer to no one including me.  Everyday, I worry I'll get a call from either the police or the hospital. Everyday, I worry I'll come home to my son's suicide because he stopped his meds and drank too much, or worse, did a different drug he knew nothing about.

My son's a dead boy walking. It's too late, now, thanks to a system that cares more about quota than quality of care. The saddest part is there are thousands of people in this situation and yet the powers that be keep taking resources away. My heart hurts for anyone who suffers these terrible disorders and is ignored. I was asked, once, if I had one wish what would it be. I replied, "To heal all the ugliness, disease, and horror from every heart in this world." It's possible, but it will take a miracle. God bless. 💙

A CHOICE - FOR MY BEST BROTHER - Anonymous

For My Best Brother:

A choice?

To have a loved one forever gone, to never be able to talk to them again, to hold them, to speak with them and share our lives together — the small moments and the big. The daily annoyances, the successes and failures, the good times and the bad. To never hear their voice again or share a meal. No more movies together, no more arguments or missed phone calls. No chance to say, "I love you," one more time or tell them, "good night." To know that they will never again feel your embrace around them, but only that of the cold earth.

Or to have them remain, though in flesh only. To watch the promise that was their life shatter and crumble. To see all traces of them shouted down by a mind that has turned on itself with no hope of peace. A life where happiness and joy have been replaced by fear and madness. To know that they will never find that place we all seek — contentment. To watch an illness not only destroy their life but the memory of them as well. To see their friends move on, as they must, a reminder of what their life may have been.

The choice is impossible but when phrased differently an answer appears. If you had to inflict one fate or another on someone you love, the choice becomes clear. I'd like to say, "I fully support and urge treatment for those suffering from serious mental illness and fully believe in it's benefits. While it cannot always stop or reverse the effects of mental illness, it can certainly improve the quality of life for those souls who suffer from such."

This is simply my way to share a thought. Something poets, song writers, authors, and many others do daily —  they are just paid to do it. 

 

Photo Credit: Jeff WassoonFlickr

Photo Credit: Jeff Wassoon
Flickr

OUR FAMILY TRAGEDY by Sonia Fletcher Dinger

I wrote the first part of my story in September 2011 while my daughter Christina was in jail awaiting transfer to Napa State Hospital. I sent it to the Treatment Advocacy Center who wanted to publish it on their website. I was afraid to have it published because I was worried that it could adversely affect my daughter's chance of eventual release. On the advice of her attorney, I said no. This is our story:

My daughter Christina was a lovely girl, a college graduate, a good student, beautiful and smart. She was diagnosed with schizophrenia after she shot and killed her father on May 13, 2010. She had no history of arrests or violence. Drug tests were clean.

She had been having mental problems since leaving home for college, but we were unaware of the severity of her illness. She was trying so hard to be normal. Two years earlier, Christina had been committed for 3 days on a psychiatric hold for "mania" but we thought it was a fluke and that she had overdosed on a nicotine patch while trying to quit smoking.

After that commitment, she saw a psychiatrist for a few months who put her on Abilify but she was not told she had schizophrenia, though she now believes that she presented ample evidence of her delusional thinking and auditory hallucinations. There are so many steps along this road to tragedy at which there was a chance for the story to take a different turn but the stars did not align in our favor.

By 2010, Christina had graduated with a degree in Sociology from UC Santa Cruz but was unable to find a well paying job so she decided to go to nursing school. She moved in with her father for a few months while she completed the prerequisites. She got straight A's the first semester but started flunking tests the following semester and was having trouble sleeping. At that time she was being treated by a psychiatrist for anxiety who put her on Effexor. I believe this drug made her illness worse.

Her father and brother began calling me frequently because she stopped going to school and was acting strangely and they didn't know what was wrong with her. Christina was calling me daily to talk about school, talking a mile a minute. I could tell she was frantic but she insisted the psychiatrist had told her it was just anxiety. She went back to the psychiatrist who put her on a mood stabilizer but it was too little too late.

The night before the shooting, I spoke with Christina and her dad and brother. We all agreed that she would move to Mount Shasta, where I live. I live in the country where there is less stress than in the Bay Area. I wanted to help Christina, and it was hard to do that over the phone. There is a nursing school here, though not the one she hoped to attend.

She wanted to drive up immediately that evening but I convinced her it would be best to see the psychiatrist in the morning to have her medicine adjusted and then go to school to withdraw from her classes before she drove the 4 hours to Mount Shasta.  

Before Christina's dad went to bed that night, he asked Christina's brother to hide the loaded gun he kept in the nightstand in his bedroom. When my son entered the room, Christina was on the phone with her boyfriend, crying, so he decided to wait. Later in the evening he grew sleepy and forgot about the gun. I don't know why my ex-husband didn't hide the gun himself.

Sometime after everyone went to bed that night, Christina began driving around in her car. She thought her car was "tapped" and she tried to set it on fire because she thought voices from the FBI or CIA were coming from it. She thought someone was following her and trying to kill her. She thought she had to kill herself to prevent World War III because President Obama had spoken directly to her on TV. If only I had let her drive up earlier or if only her dad didn't have a loaded gun, perhaps this tragedy wouldn't have happened. Everyone can think of things they should have done if they had only known.

As her psychosis raged she drove back home and entered her dad's bedroom to get the gun and kill herself. As soon as she entered her dad's room, the voices told her to kill her dad. She says she didn't think twice. She was so ill she couldn't think straight at all. The voices commanded her.  

Christina loved her dad. She told me they'd been getting along well and she was enjoying her stay with him. There was lots of news coverage and the prosecutor made up a motive. They said Christina killed her father because he was pressuring her to move out to get away from her boyfriend. The news articles didn't tell the whole story. The DA suspected me of being complicit and trying to "tip Christina off" as I frantically tried to reach her on her cell phone. I was justifiably afraid she would try to kill herself.

She was picked up by police in a park in Oakland the following day, naked and covered with blood, and admitted to an acute care psychiatric hospital until she could be stabilized. She spent two weeks being "stabilized" and was immediately arrested and charged with first degree murder upon discharge. Needless to say, our family was devastated.

When I came out of shock, I hired a lawyer who did a comprehensive investigation which found a long history of mental illness. A psychologist hired by the court agreed with the psychiatrist hired by the defense. Christina had schizophrenia. The DA lowered the charge from first to second degree murder. Christina pled guilty, avoiding a trial, and was acquitted by reason of insanity. In 2011, Christina was sentenced to Napa State Hospital for 6 months to life but she awaited transfer from the jail for several months because there were no beds available.

Christina has responded well to treatment with anti-psychotic medication. (She was later diagnosed with schizo-affective disorder and bipolar disorder at Napa State Hospital.) I'm glad she didn't kill someone in the community. I would not want another family to suffer as we have. If she had, I'm sure she would be spending the rest of her life in prison. She still has a chance for a good life when she is deemed recovered. I am told she will continue to receive counseling and treatment after she is released. Fortunately, she knows that she has to take medication for the rest of her life.

Postscript:

The story above was the story of our family tragedy that I was afraid to tell before. Christina was transferred to Napa State Hospital on her birthday, September 14, 2011, and released from Napa State Hospital in November of 2016, six and a half years after killing her dad. She lives in a group home with other mentally ill people. She's on a conditional release program which is like parole for serious mental illness. She's in school to become a paralegal. 

I'm grateful that my daughter has a second chance for a better life. I know that so many others are spending tortured lives in prison or on the streets. If not for the fact that I had the ability to hire a lawyer to represent her, she could be spending the rest of her life in prison. 

Unfortunately, there are still so many people who don't understand mental illness. My second and current husband is unsympathetic. He wants nothing to do with my daughter. My son, still grieving for his dad, has disowned his sister for killing his dad and disowned me for coming to her aid. At this time I'm not permitted to visit my son or my granddaughters who are 1 and 2 years old. Our family is fractured by mental illness. I'm ashamed to say that I had little sympathy or support for my sister who has schizophrenia as well, until the disease struck my own daughter and shocked me into realizing the truth:  schizophrenia is a brain disease that destroys a victim's ability to control their own thoughts and actions. Never in a million years would I have believed that this nightmare could happen to us until it did.

Sonia's Mom Alice, Christina, and Sonia

Sonia's Mom Alice, Christina, and Sonia

A GRANDMOTHER'S PRAYER by Marie Abbott

Years ago when my grandson, Kyle, was only 11, we begged for help to keep him safe and out of trouble. Several physicians later, and many tears and meds for him, we were told, "Wait till he gets in trouble with the law. Then he will get help."

His school told us the same thing. No one understood that what they were telling us was our fear. We didn't want this sweet soul of a kid getting into trouble with the police. We were not that kind of family. He was not that kind of kid. We were not going to let that happen. We would fight, pray, restrict him, and take him to every doctor we could find.

We were in denial.  When serious mental illness takes hold of our kids, we have no control.  Mental illness wins over and over again.

Kyle is now barely 20 and has four different friends sleeping in his apartment — friends whose families must have said and fought for the very same things our family fought for.

We must fight and tell the world how our kids don't have a chance. They didn't pray for mental illness anymore than one would pray for cancer. We need to fight for hospital beds in which to keep our kids safe. Our kids need to have safe places to live, affordable meds, support and understanding of their illness.

God hear my prayer.

Kyle and his buddy, Beary

Kyle and his buddy, Beary

A SURPRISE by Patricia Gager

My son, Toby, was diagnosed as ADHD with emotional disturbance at age 5. He was misdiagnosed for twenty years and it took a lot of constant begging and staying on top of it to try to get the correct diagnoses.  My son's been incarcerated in our local county jail for sixteen months as of April 1, 2017.  He was finally diagnosed in jail last November with autism. It explained a lot of his repetitions, fixations, and other things when he was growing up. By my estimate, my son is about 13-15 years old brain wise, and turned 25 chronologically in jail. He's charged with a 2nd degree felony by his own admission and his court appointed attorney has done absolutely nothing. 

A couple weeks ago a friend of mine referred me to an attorney who handles these types of cases. I called and spoke to him over the phone several times.  He wanted to meet my son before agreeing to take my son's case — to make sure they got along. I was surprised, but thinking about it later, it made sense to me.

The attorney saw my son on Tuesday. I went for my weekly visit on Wednesday. My son was in a fairly good mood explaining that the attorney had come to see him. He said, "We got along good." 

Before I left my son said, "Mom, did you know this attorney is blind?"  I told him I didn't know because we'd only spoken on the phone.

After my visit with my son, I went to see the attorney and, sure enough, he was blind. He had his cane and everything. I walked away feeling much better about my son's situation just from the intelligent conversation and the options he provided on what strategies we could use. I felt better than I had in the last sixteen months. I never imagined I would get an attorney with a disability to help my son with a disability. I just wanted to share.

Toby with his sister, Felicia, and mom, Patricia.

Toby with his sister, Felicia, and mom, Patricia.

From the oldest

HAPPY PIC

Photo Credit: Marisa Farnsworth

Photo Credit: Marisa Farnsworth

Spring surprise on the stairway.

Hope you have a good weekend everybody!

From the oldest

NOT ACCEPTING THINGS by Tama Bell

It really does bother me so much when people, especially when mental health officials/experts tell me, "There is nothing you can do."

One person even quoted a part of the serenity prayer to me while I was explaining the pain I was in about my son's illness and recent setbacks. He referred to the part which says, "Accept the things I cannot change."

Thankfully, I'd heard of a quote myself, by someone else who must have been told to just accept what is. I repeated that quote to him. “I am no longer accepting the things I cannot change.  I am changing the things I cannot accept.”  (Angela Y. Davis)

This has truly become my mantra.

 

Photo Credit: Zoe ToselandDr. Seuss LoraxFlickr.com  

Photo Credit: Zoe Toseland
Dr. Seuss Lorax
Flickr.com

 

 

MY SON'S LIFE - A VIDEO by Sherry Hunter

https://animoto.com/play/5e7TRagB5hYZh2IgVDw0sw

Sherry Hunter is a brave, loving mom.  She's created a video tribute to her brave, loving son, Mitchel, who lives with and suffers from serious mental illness — schizophrenia.  Pictures are often stronger than words. See Sherry's video. Click on the link above.

Everyone, like Sherry, who's sharing their story on this blog, is trying to bring serious mental illness (SMI) into our common discourse.  Maybe, then, families and individuals coping with SMI will begin to receive support from the broader public just as it has come around to support people with cancer, AIDS, autism, and other once stigmatizing conditions.