UNEXPLAINED GRACE by Donia Que

I am without the benefit of extended family beyond my 3 sons and 2 grandsons. Sometimes, when I feel so weary from the chronicity of this disease (bipolar disorder with psychosis), I break down. I do. I feel too broken to go on, and my thoughts wander in search of anybody in my life who gives a damn.

It's been like this since my youth, through physical and sexual abuses, through childhood kidnapping, through so many foster homes and all the void and vacuum that were the source of my soul-searching -- a frenzied and fevered search for reprieve, and I am always left with my own nothingness.

By some unexplained grace, though, through the haze and across the distances that separate me from anyone who speaks to me of home or happiness or love, I meet people who somehow help to fill this gnawing emptiness, who give me pause to feel the internal excitement of having someone to celebrate.

I know that you could not know, dear friend -- nor can others who have become a sort of secret, source of celebration for me -- but you've given me moments of peace, of calm in the storm, of hope and of courage. Thank you for all that you do, and for all that you do without even knowing it. Your life-energy has a far greater worth, perhaps, than you can even imagine.

(Especially for Mary Ann Renz)

Donia Que

Donia Que

HAPPENING NOW - WALTER'S LOOKING FOR MY MOM by Robin Burton

Hello. This is me and my friend Walter Pratt, Jr.

I met Walter when I first started doing street outreach in St. Louis. At the time Walter lived under an overpass. I kept up with Walter as he moved around. He didn't go far. He slept in the park for a little while after he moved from the overpass. Then he moved to Tent City over on the Illinois side.

Walter was there for me as much as I was there for him. Walter watched as I went to California on more than one occasion. He saw the heartache in my eyes when I'd come back without my mom.

A few months ago, Walter announced that he was going to California. Walter knew my mom was last seen living homeless in Santa Monica, California in 2013 and he wanted to find her for me. As soon as I heard the news and Walter's plan, I went to Tent City to talk him out of it. I told him how dangerous the streets in California could be. I told him that I'm sure my mom's moved on and that I've been there numerous times and just can't find her. I also told him, if something were to happen to him, it would devastate me to the core.

Of course, Walter's mind was made up. He was going and that was that. So then we discussed California and the different places in the Los Angeles area. I told him, if I were homeless, I'd live on Venice Beach. I told him about the boardwalk and how beautiful it is. I told him it's not against the law to be homeless on the beach there. Another outreach person bought Walter a bus ticket to Los Angeles and another homeless advocate printed fliers of my mom for him.

Walter left for California a few days ago and arrived in Los Angeles. He told me he figured out how to use Wi-Fi on his phone so he was able to call me through Facebook to let me know he made it. He told me he was going to start his search. I reminded him, again, about Venice Beach and told him to be careful. I asked him not to go to Skid Row at night until he gets familiar with the area.

If you're in California and see my friend, Walter, please give him a big hug for me. And please join me as I continue to pray for Walter's safety. Walter's forever captured my heart.

I love you, Dear Friend. <3 ~Robin~

Robin Burton is founder of Missing & Homeless

AND THERE'S MORE...SO PROUD OF MY HOMETOWN NEWSPAPER - LINCOLN NEWS MESSENGER

Be Supportive of Those with Mental Illness

By: Carol Feineman, Editor

We often look the other direction when a stranger on the street or at a store is talking loudly to an invisible person or yelling out obscenities.

The majority of us don’t try to help this stranger, let alone offer a friendly smile. What we forget is that they can’t help acting out because of mental illness.

Yet many of us, or our loved ones, suffer from some form of mental illness.

In the United States, mental illness conditions affect one in five adults in any given year, according to NAMI (National Alliance on Mental Illness). That is equivalent to 43.8 million adults or 18.5 percent of the country. 

Those mental health conditions include schizophrenia, bipolar disorder, depression, schizo-effective disorder, obsessive compulsive disorder and anxiety, according to David Bain, executive director of NAMI Sacramento.

About one in 25 adults in the U.S., or 10 million or 4.2 percent, experiences a serious mental illness in a given year that substantially interferes with or limits one or more major life activities, according to NAMI. Approximately one in five teens aged 13 to 18, or 21.4 percent, experiences a severe mental disorder at some point during their life. For children ages 8 to 15, the estimate is 13 percent.

“Living with mental illness varies from person to person, condition to condition. But basically it comes down to it’s hard, sometimes impossible,” Bain said, “to make the decisions to run your life when your brain isn't thinking clearly. But you don't know that your brain isn't thinking clearly. You think you're fine but everyone else is wrong so trust or lack thereof becomes an issue.”

And when a mentally-disturbed man, Esteban Santiago, allegedly randomly shot and killed five people Friday at the Fort Lauderdale Airport, that makes us more apprehensive about being around those from mental illness.

But individuals with mental illness generally are not violent and the risk to others is low. In fact, NAMI’s national spokesman Bob Corolla pointed out, they are more likely to be victims of violence.

The good news is that mental illness can be managed.

“There is no cure as such. But mental illness can be treated and managed successfully,” Carolla said. “People living with mental health conditions are able to lead productive, fulfilling lives. The key is having access to treatment and support, which unfortunately is a difficult challenge in our health-care system.”

Many of us still believe that we need to stay clear of individuals with mental illness because they’re not like us.

That isn’t the case. One of my friends in Nevada City was a fun, generous songwriter. Before I knew her, she refused to take bipolar medication and couldn’t get out of bed for two years. The state understandably put her first-born daughter in a foster home.

A decade later, my friend was taking meds and successfully raising her second daughter and recording originals. Unfortunately, the other mothers in the school that our daughters attended stayed away from her. In retrospect, I should have defended her when acquaintances called her crazy.

Those with mental illness often feel like they have to keep their conditions a secret. They consider it a stigma.

“Chances are there is someone in your life and you don't know about their illness because many people keep it hidden.  Talking about mental illness is very much like coming out of the closet,” NAMI’s Bain said. “People face fear or hatred from those they love, sometimes to the point of being ostracized from family and community.”

Lincoln resident Dede Ranahan, whose son, Pat, was bipolar since childhoodwas not allowed to talk to others about her son’s mental illness. It was a stigma Pat carried with him until he died three years ago at age 45 from either cardiac arrest or a seizure.

Ranahan is proud of her son. Pat was a beloved son, grandson, uncle, brother, friend.

“He was very smart, he was very funny, he was very thoughtful,” Ranahan said. “He was a student at Chico State University and organized a parents’ appreciation day where we had a picnic, played games, he made T-shirts. He was thoughtful, he was sensitive. He was an adept poet. I miss him.”

Ranahan now blogs about mental illness issues (soonerthantomorrow.com) and leads a Lincoln support group to help families dealing with mental health issues.

“It’s mind-boggling what is happening in our country right now with our crummy mental-illness system. So much pain and suffering these mothers go through and often mothers are held back if their ill child doesn’t want anyone to know,” Ranahan said. “They don’t want to abuse their trust so they end up not talking about it. If we don’t talk about it, the extent of the pain and suffering can’t be known by the broader public. The broader public doesn’t know how serious the problems are in our mental health system. HIPAA (Health Insurance Portability and Accountability Act of 1996) laws prevent parents from helping their children. There is a lack of beds, lack of housing and a lack of mental health professionals that we need.”

How can the community help?

“Just by not making quick judgments. If someone acts out, you don’t know what they’re dealing with,” Ranahan said. “We have to be less judgmental. If you know people advocating for mental illness issues, if they need your signature, support them in their advocacy.”

NAMI’s Bain agrees with Ranahan by saying that family members can help best by being supportive but not judgmental.  

“It doesn't mean that they need to give in to their loved ones demands," Bain said. "Just don't say things like ‘try harder, pray to God for help, focus more.’  Also, be flexible. Diagnosis can change. Circumstances can change.”

And if someone is yelling in the street or talking to an invisible person, don’t look away.

© Copyright Gold Country Media

http://www.lincolnnewsmessenger.com/article/1/11/17/be-supportive-those-mental-illness

 

Patrick Ranahan: "Before our world came undone."

Patrick Ranahan: "Before our world came undone."

COMMENTS FROM OUR SUPPORT GROUP - by Dede Ranahan

I run a small support group for family members. The following are random comments from
one of our meetings. Perhaps you'll identify with some of them. While trying to help our loved ones, we need help ourselves. (Excerpt from my memoir with permissions.)

Photo Credit: MSJWatson83Flickr

Photo Credit: MSJWatson83
Flickr

“My child says she’s fine.  She won’t see a doctor.  She’s forty-five.  I can’t make her go.  We’re running out of money to assist her.”

“If we turn him out, he’ll be on the street.  I can’t live with that.”

“My sister has no boundaries.  She’ll tell anyone anything.  She’ll tell her social security number if they ask.”

“I’ve lost my other children.  They don’t want to be around the chaos.”

“I have one child.  I don’t have the experience of a well child.”

“My ill son is living with us.  It’s very difficult.  I’ve just been through surgery and chemo for ovarian cancer.  My husband is developing dementia.  I have no support.”

“My daughter got a traffic ticket for reckless driving.  They fined her and sentenced her to eighty hours of community service.  She doesn’t have the capacity to follow through and find an organization that will let her volunteer for them.”

“I read something that resonated with me.  ‘A mother is as happy as her unhappiest child.’”

“My daughter’s illness is fracturing the entire family.”

“It seems like this illness is very self-centered.  Everything's about me.

“I can’t talk about these things anywhere else.  People don’t understand.”

"It's such a relief to know I'm not the only one in this kind of situation."

WORD IS GETTING AROUND - by Dede Ranahan

I was contacted recently by a local newspaper.  Last week they published the article below (posted here with a couple of my corrections) along with a photo of me from the blog. NOTE: Instead of this article in a newspaper, I'd rather have my son back. Pat was a sensitive, kind, friendly man with an incisive sense of humor. He wanted, more than anything, not to have bipolar disorder and to live a long life. I miss him.

BLOGGING ABOUT MENTAL ILLNESS TO HELP FAMILIES
by Carol Feineman, Editor

Dede Ranahan wants other parents and their families dealing with mental illness to learn from her son’s tragic death three years ago. Her son, Pat, died in 2014 while in a hospital psychiatric ward, from either cardiac arrest or a seizure. Pat, who was 45, dealt with bipolar disorder since his childhood.

Ranahan, a Lincoln resident, started a blog in July in which she invites the public to add their stories about dealing with their loved one’s mental illnesses. The blog, “Sooner than tomorrow, A Safe Place to Talk About Mental Illness in Our Families,” can be found at soonerthantomorrow.com. It is also the name of Ranahan’s 94,000-word manuscript, “Sooner Than Tomorrow, A Mother’s Memoir.”

“It’s my story and my son’s story, but in a way, it’s every mother’s/child’s story living with mental illness,” Ranahan said.

Approximately one in every five adults in the United States, or 43.8 million or 18.5 percent, will have a mental health condition in a given year, according to NAMI (National Alliance on Mental Illness).

“Everyone is susceptible.  Also, just because someone may have been brain healthy for 15, 20, 25 years doesn't mean the switch cannot be flipped,” said David Bain, executive director of NAMI Sacramento. “Most people are fine until they hit their late teens or early 20s before their condition manifests. But I've talked to people who get sick after 30.”

Ranahan started her blog this summer as a forum for other parents to share their stories. “I work on the blog four days a week, either writing, researching, or communicating with others. Some of these stories weigh heavily on me so on Fridays,” Ranahan said, “I post a beautiful photo or a happy photo to brighten things up.” Today, over 2900 viewers throughout the country have visited the blog, according to Ranahan.

NAMI (National Alliance on Mental Illness) emphasizes that outside support and encouragement is critical for everyone in the family, not only the person with the mental health condition. “Family members need to be informed and educated on the realities of their loved ones condition.  That's what organizations like NAMI do best. We have classes family members can take,” said NAMI Sacramento’s Bain. “Support groups are another vital tool for family members.  Not only will they learn things to help their loved ones but to help themselves too. Often, family members give all of themselves until they burn out. No one wants to see that happen. So we caution people to take care of themselves so they can better take care of others.”

Since early 2013, Ranahan has also led a support group at 2 p.m. the second Friday of the month at the Raley’s conference room in Lincoln. The support group’s purpose is to provide a place for parents and grandparents dealing with adult children coping with serious mental health issues “to vent and breathe and let it out,” according to Ranahan.

“Some family members are trying to help loved ones who are living with them. Some of their loved ones are homeless and some are in jail for different reasons. It’s all over the map,” Ranahan said. “It’s very stressful for the other members of the family — parents, siblings, grandparents. Everyone’s in crisis and they’re not clear what to do. They’re in some kind of chaos. We’re there in the support group to say, 'We get it. We understand what you're going through.'"

Monthly support group participation varies. “New people come, others come back. There’s a need. There are other things like NAMI affiliates where people can go. They’re more formal but our group is less structured,” Ranahan said. While the Lincoln Hills Foundation donated a $1,000 for the support group to buy coping and healthcare guide books, the support group is open to all Lincoln-area residents.

Pat Ranahan didn’t want his mother to talk about his mental illness. Since he’s no longer here, Ranahan is blogging and leading the support group to help others deal with mental health issues. “Since my son passed, I feel that the handcuffs are taken off and I can advocate more freely. Pat didn’t want people to know about his illness because he was afraid of the stigma,” Ranahan said. “He was afraid that he wouldn’t get a job, girlfriends, or good housing. He was embarrassed. It’s our Catch-22. By keeping our stories secret, we don’t gain understanding and support from the broader public.”

 

Dede Ranahan in The Lincoln News Messenger

Dede Ranahan in The Lincoln News Messenger

Thank you Carol Feineman and Lincoln News Messenger.
To read article online go to http://www.lincolnnewsmessenger.com/article/1/11/17/blogging-about-mental-illness-help-families